MitrendS is intended to enable more precise symptom control for patients with multiple sclerosis (MS). The aim of this project is to develop new methods for recording important symptoms of the disease. The regular performance of exercises both at the hospital and at home offers the possibility of recording fluctuations in the course of the disease. In the future, better control of therapy effectiveness will be achieved on the basis of individual measurement results.
MS is a chronic disease of the central nervous system. The exact mechanisms contributing to this disease process and the correlations with other aspects of the disease are yet unknown. A cure for MS does not yet exist. In addition to the development of targeted drugs, the development of new measuring methods for the more accurate recording of individual symptoms is also important.
MitrendS is used in a study in the Department of Neuroimmunology and MS Research (nims) of the University Hospital Zurich. By participating in the Citizen Science project, healthy people can help to collect comparative data. In order to investigate comparative parameters and learning effects, a participation period of two weeks is required.
The results of the cognitive and motor exercises you have performed, including measurements like completion time, execution speed, accuracy, number of attempts and error rates will be analyzed and compared to the other app users test results. The data collected will then be used in anonymized form in order to identify differentiator factors between healthy individuals and MS patients.
Your sole participation in the research project will not bring you immediate personal benefits. However, the results of the research project may help to improve the understanding and targeted treatment of patients with multiple sclerosis in the future and to better understand the progression of the disease. With your contribution, you power medical research. Thank you!
More information about MitrendS: www.mitrends.ch
What happens with the data?
Your data is stored in your user account of the MIDATA platform. Thus, the data completely remains in your possession and under your control. The MIDATA cooperative is a completely independent platform and supports data-driven research through patient empowerment and “Citizen Science” approaches.
For further information about MIDATA and its structure visit www.midata.coop.