Lynch Syndrome Registry

10+
Downloads
Content rating
Everyone
Screenshot image
Screenshot image
Screenshot image
Screenshot image

About this app

The Lynch Syndrome Registry is enrolling individuals with known or suspected Lynch syndrome in a research study that collects clinical information and biological samples to help researchers learn more about Lynch syndrome with the goal of developing strategies that can improve prevention, early detection and treatment of cancer.

OUR PURPOSE
- The purpose of this research is to collect clinical information and samples from individuals with Lynch syndrome to establish a registry
- The registry will help researchers learn more about Lynch syndrome with the goal of developing strategies that can improve prevention, early detection and treatment of cancer

WHO CAN JOIN?
You are 18 years or older AND one of the following:
- You have a positive genetic mutation for Lynch syndrome
- You have a cancer with mismatch repair deficiency or microsatellite instability AND a variant of uncertain significance in a Lynch syndrome gene with a family history suggestive of Lynch syndrome
- You have been determined to be an obligate carrier for Lynch syndrome

Taking part in this research study may or may not benefit you. We hope the information learned from this research study will provide more information about development of cancer and pre-cancerous lesions in individuals with Lynch syndrome. This may lead to improvements in early detection and prevention of cancer in the future.
Updated on
Nov 6, 2024

Data safety

Safety starts with understanding how developers collect and share your data. Data privacy and security practices may vary based on your use, region, and age. The developer provided this information and may update it over time.
No data shared with third parties
Learn more about how developers declare sharing
This app may collect these data types
Personal info and Health and fitness
Data is encrypted in transit
You can request that data be deleted

What's new

Welcome to Lynch Syndrome Registry’s latest version. This version comes with several improvements that will ameliorate your experience with the app. Including:
- Bug Fixes
- Improved Performance