Moebius Connect

Moebius Syndrome Foundation

About this app

Living with Moebius syndrome, or loving someone who does, means navigating a condition that most doctors have never seen and most people have never heard of. Moebius Connect puts the resources, research, and community you need right in your pocket, so you are never searching alone.

Built by the Moebius Syndrome Foundation, Moebius Connect is a free companion app that brings our foundation's full library of support directly to your phone. Whether you were diagnosed yesterday or have lived with Moebius syndrome your whole life, whether you are a parent, a sibling, a spouse, or a friend, this app was made for you.

WHAT YOU WILL FIND INSIDE

Resources
Practical, vetted information on medical care, specialists, education, and daily life with Moebius syndrome, organized so you can find what you need fast.

Science
Stay current on the latest Moebius syndrome research, studies, and medical developments, explained in plain language.

Events
Never miss a conference, webinar, support group meeting, or community gathering. See what is coming up and how to join in.

Self Esteem
Resources focused on confidence, mental health, and self-image, built specifically for a community that navigates the world a little differently.

Awareness
Tools and content to help you educate others and advocate for the Moebius community, whether that is at school, at work, or in your own neighborhood.

Fun Zone
Because this community is about more than a diagnosis. Light, engaging content to enjoy and share.

Feedback
A direct line to the Moebius Syndrome Foundation. Tell us what you need and help shape what comes next.

WHY MOEBIUS CONNECT

Moebius syndrome is estimated to impact 1 in 50,000 to 500,000 people worldwide. When a condition is this rare, finding accurate information and people who understand can be one of the hardest parts of the journey. Moebius Connect was built to close that gap, giving the entire Moebius community, individuals, parents, caregivers, and loved ones, one trusted place to turn.

ABOUT THE MOEBIUS SYNDROME FOUNDATION

The Moebius Syndrome Foundation is a U.S. national 501(c) organization dedicated to supporting individuals and families impacted by Moebius syndrome through education, research funding, community connection, and advocacy. Moebius Connect is one more way we are working to make sure no one impacted by Moebius syndrome has to face it without support.

Download Moebius Connect today and carry resources and support with you.

What’s new

Welcome to Moebius Connect. Explore educational content, find healthcare providers, connect with the global Moebius community, and stay updated on events and awareness opportunities, all in one place.