EDS Org App

Ehlers-Danlos Organsisation e.V.

About this app

An app specifically tailored to the needs of people with Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD)!

Imagine a digital companion that simplifies your daily life, facilitates communication with others, and provides access to essential information.

The first version offers:

- Event calendar & current news. Direct access to dates and updates from the organization.

- Exclusive chat function for members. Secure communication within the community.

- Information brochure on EDS, HSD, and related topics. Concise, reliable content for education and support.

Future versions will include:

- Symptom diary. For structured recording of symptoms, sleep patterns, diet, and medication intake.

- Medical guidelines & assistive device information. Access to evidence-based recommendations and practical advice on assistive devices.

- Physiotherapy guide with exercise videos. Interactive instructions for performing physiotherapy exercises tailored to individuals with EDS.

- Study research. Overview and access to current scientific studies on Ehlers-Danlos syndrome.

- Survey participation. Opportunity to contribute to projects and provide feedback.

- Psychological toolbox. Tools and resources to support mental health and cope with chronic illnesses.

- Digital ID cards & business cards. Personalized documents for presentation at medical facilities or in everyday life.