Written in an engaging, debate-style format for accessibility to non-specialists Features general introductions to each topic that precede scholarly debates Presents the latest, cutting-edge thoughts on relevant bioethics ideas, arguments, and debates
Historically one can see that health, disease, and illness are concepts that have been ever fluid. Modern science, sociology, philosophy, even society—among other factors—constantly have these issues under microscopes, learning more, defining and redefining ever more exactly. Yet often that scrutiny, instead of leading toward hard answers, only leads to more questions. Health, Disease, and Illness brings together a sterling list of classic and contemporary thinkers to examine the history, state, and future of ever-changing "concepts" in medicine.
Divided into four parts—Historical Discussions; Characterizing Health, Disease, and Illness; Clinical Applications of Health and Disease; and Normalcy, Genetic Disease, and Enhancement: The Future of the Concepts of Health and Disease—the reader can see the evolutionary arc of medical concepts from the Greek physician Galen of Pergamum (ca. 150 ce) who proposed that "the best doctor is also a philosopher," to contemporary discussions of the genome and morality. The editors have recognized a crucial need for a deeper integration of medicine and philosophy with each other, particularly in an age of dynamically changing medical science—and what it means, medically, philosophically, to be human.
The contributors argue that genetics and medicine rest on beliefs widely held in American society. Scientific progress is good, and highly sophisticated technologies are appropriate means to solving medical problems. The better understanding they gain about the nature and evolution of disease, the more prepared clinicians will be to treat and prevent future occurrence of disease. A belief that medicine, including genetic medicine, is clear, factually based, and objective undergirds the strategies and norms of genetic counseling.
This collection of original papers explores the history, values, and norms of that process, with focus on the value of non-directiveness in counseling practice. The contributors' examination of genetic counseling issues serves as a foundation from which to address the ethical, legal, and policy considerations of clinical genetics.
Timely and balanced, Replacement Parts is a first-of-its-kind collection aimed at surgeons, physicians, nurses, and other professionals involved in this essential lifesaving activity that is often fraught with ethical controversy.
"Caplan's choice of topics is broad and his opinions challenging.... This volume will interest the general public. It is a good survey of a broad range of ethical issues, as seen by one prominent bioethicist who has thought much about the subject. Caplan's well-merited reputation as a commentator and interpreter between the scholarly and the public arena is reaffirmed in this book." -- The Washington Post
"Arthur Caplan -- with assiduous effort, unflagging energy, encyclopedic knowledge, and imposing talent -- has become America's most visible commentator on bioethics." -- The Philadelphia Inquirer
"Arthur Caplan is perhaps the most quoted bioethicist in the US and this new collection of essays illustrates why." -- Nature Medicine
"... an important book of essays addressing the most problematic and persistent questions in the realm of contemporary bioethics. He offers a highly readable text balancing irony and incisive analysis with a palpable sense of moral urgency as he confronts a variety of subjects." -- Curtis W. Hart, BCC
"Careful consideration of some of the knottier bioethical problems of our times, by the director of the Center for Bioethics at the University of Pennsylvania, who fears that cynicism and mistrust have eroded our ability to see ourselves as our brothers' keepers." -- Kirkus Reviews
"Caplan's particular skill is an ability to identify, analyze, and explain the extremely complex moral questions that grow out of changes in health care, science, and medicine." -- The New York Times Magazine
"An important critical voice for American medicine." -- The New England Journal of Medicine
"... a useful introduction to a variety of bioethical issues." -- Library Journal
In this impassioned book, Arthur L. Caplan, America's leading bioethicist, calls for an end to cynicism and mistrust in our approach to resolving health care issues. He brings this vision to discussions of some of the most exciting issues at the frontiers of medical ethics today -- including doctor-assisted suicide, gene therapy, and the headline-grabbing case of Dolly the sheep and the possibility that human beings might one day be cloned.
Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?
“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”
There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers.
“December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”
Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.
Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.
From the Hardcover edition.
PEN/Oakland Award Winner
BCALA Nonfiction Award Winner
Gustavus Meyers Award Winner
From the era of slavery to the present day, the first full history of black America’s shocking mistreatment as unwilling and unwitting experimental subjects at the hands of the medical establishment.
Medical Apartheid is the first and only comprehensive history of medical experimentation on African Americans. Starting with the earliest encounters between black Americans and Western medical researchers and the racist pseudoscience that resulted, it details the ways both slaves and freedmen were used in hospitals for experiments conducted without their knowledge—a tradition that continues today within some black populations. It reveals how blacks have historically been prey to grave-robbing as well as unauthorized autopsies and dissections. Moving into the twentieth century, it shows how the pseudoscience of eugenics and social Darwinism was used to justify experimental exploitation and shoddy medical treatment of blacks, and the view that they were biologically inferior, oversexed, and unfit for adult responsibilities. Shocking new details about the government’s notorious Tuskegee experiment are revealed, as are similar, less-well-known medical atrocities conducted by the government, the armed forces, prisons, and private institutions.
The product of years of prodigious research into medical journals and experimental reports long undisturbed, Medical Apartheid reveals the hidden underbelly of scientific research and makes possible, for the first time, an understanding of the roots of the African American health deficit. At last, it provides the fullest possible context for comprehending the behavioral fallout that has caused black Americans to view researchers—and indeed the whole medical establishment—with such deep distrust. No one concerned with issues of public health and racial justice can afford not to read Medical Apartheid, a masterful book that will stir up both controversy and long-needed debate.
From the Trade Paperback edition.
Breakthroughs in genetics present us with a promise and a predicament. The promise is that we will soon be able to treat and prevent a host of debilitating diseases. The predicament is that our newfound genetic knowledge may enable us to manipulate our nature--to enhance our genetic traits and those of our children. Although most people find at least some forms of genetic engineering disquieting, it is not easy to articulate why. What is wrong with re-engineering our nature?
"The Case against Perfection" explores these and other moral quandaries connected with the quest to perfect ourselves and our children. Michael Sandel argues that the pursuit of perfection is flawed for reasons that go beyond safety and fairness. The drive to enhance human nature through genetic technologies is objectionable because it represents a bid for mastery and dominion that fails to appreciate the gifted character of human powers and achievements. Carrying us beyond familiar terms of political discourse, this book contends that the genetic revolution will change the way philosophers discuss ethics and will force spiritual questions back onto the political agenda.
In order to grapple with the ethics of enhancement, we need to confront questions largely lost from view in the modern world. Since these questions verge on theology, modern philosophers and political theorists tend to shrink from them. But our new powers of biotechnology make these questions unavoidable. Addressing them is the task of this book, by one of America's preeminent moral and political thinkers.
This third edition is revised and updated and includes discussions of several landmark cases, including the tragic stories of Terri Schiavo and Jesse Gelsinger (the first death caused by genetic research). Devettere addresses new topics such as partial-birth abortion law, embryonic stem cell research, infant euthanasia in The Netherlands, recent Vatican statements on feeding tubes, organ donation after cardiac death, new developments in artificial hearts, clinical trials developed by pharmaceutical companies to market new drugs, ghostwritten scientific articles published in major medical journals, and controversial HIV/AIDS research in Africa. This edition also includes a new chapter on the latest social and political issues in American health care.
Devettere’s engaging text relies on commonsense moral concepts and avoids academic jargon. It includes a glossary of legal, medical, and ethical terms; an index of cases; and thoroughly updated bibliographic essays at the end of each chapter that offer resources for further reading. It is a true classic, brilliantly conceived and executed, and is now even more valuable to undergraduates and graduate students, medical students, health care professionals, hospital ethics committees and institutional review boards, and general readers interested in philosophy, medicine, and the rapidly changing field of health care ethics.
The rapid pace of emerging technologies is playing an increasingly important role in overcoming fundamental human limitations. Featuring core writings by seminal thinkers in the speculative possibilities of the posthuman condition, essays address key philosophical arguments for and against human enhancement, explore the inevitability of life extension, and consider possible solutions to the growing issues of social and ethical implications and concerns. Edited by the internationally acclaimed founders of the philosophy and social movement of transhumanism, The Transhumanist Reader is an indispensable guide to our current state of knowledge of the quest to expand the frontiers of human nature.
No one could believe that the handsome young doctor might be a serial killer. Wherever he was hired—in Ohio, Illinois, New York, South Dakota—Michael Swango at first seemed the model physician. Then his patients began dying under suspicious circumstances.
At once a gripping read and a hard-hitting look at the inner workings of the American medical system, Blind Eye describes a professional hierarchy where doctors repeatedly accept the word of fellow physicians over that of nurses, hospital employees, and patients—even as horrible truths begin to emerge. With the prodigious investigative reporting that has defined his Pulitzer Prize–winning career, James B. Stewart has tracked down survivors, relatives of victims, and shaken coworkers to unearth the evidence that may finally lead to Swango’s conviction.
Combining meticulous research with spellbinding prose, Stewart has written a shocking chronicle of a psychopathic doctor and of the medical establishment that chose to turn a blind eye on his criminal activities.
All these problems have been shielded from public scrutiny because they're too complex to capture in a sound bite. But Ben Goldacre shows that the true scale of this murderous disaster fully reveals itself only when the details are untangled. He believes we should all be able to understand precisely how data manipulation works and how research misconduct in the medical industry affects us on a global scale.
With Goldacre's characteristic flair and a forensic attention to detail, Bad Pharma reveals a shockingly broken system and calls for regulation. This is the pharmaceutical industry as it has never been seen before.
“Wherever the corpse is, there the vultures will follow.” —Matthew 24:28
Body Brokers is an audacious, disturbing, and compellingly written investigative exposé of the lucrative business of procuring, buying, and selling human cadavers and body parts.
Every year human corpses meant for anatomy classes, burial, or cremation find their way into the hands of a shadowy group of entrepreneurs who profit by buying and selling human remains. While the government has controls on organs and tissue meant for transplantation, these “body brokers” capitalize on the myriad other uses for dead bodies that receive no federal oversight whatsoever: commercial seminars to introduce new medical gadgetry; medical research studies and training courses; and U.S. Army land-mine explosion tests. A single corpse used for these purposes can generate up to $10,000.
As journalist Annie Cheney found while reporting on this subject over the course of three years, when there’s that much money to be made with no federal regulation, there are all sorts of shady (and fascinating) characters who are willing to employ questionable practices—from deception and outright theft—to acquire, market and distribute human bodies and parts. In Michigan and New York she discovers funeral directors who buy corpses from medical schools and supply the parts to surgical equipment companies and associations of surgeons. In California, she meets a crematorium owner who sold the body parts of people he was supposed to cremate, generating hundreds of thousands of dollars in profits. In Florida, she attends a medical conference in a luxury hotel, where fresh torsos are delivered in Igloo coolers and displayed on gurneys in a room normally used for banquets. “That torso that you’re living in right now is just flesh and bones to me. To me, it’s a product,” says the New Jersey-based broker presiding over the torsos. Tracing the origins of body brokering from the “resurrectionists” of the nineteenth century to the entrepreneurs of today, Cheney chronicles how demand for cadavers has long driven unscrupulous funeral home, crematorium and medical school personnel to treat human bodies as commodities.
Gripping, often chilling, and sure to cause a reexamination of the American way of death, Body Brokers is both a captivating work of first-person reportage and a surprising inside look at a little-known aspect of the “death care” world.
Drawing on his background in statistics, epidemiology, and health policy, John Abramson, M.D., reveals the ways in which the drug companies have misrepresented statistical evidence, misled doctors, and compromised our health. The good news is that the best scientific evidence shows that reclaiming responsibility for your own health is often far more effective than taking the latest blockbuster drug.
You—and your doctor—will be stunned by this unflinching exposé of American medicine.
It is now evident that the "illegal biologicals" he referred to included the pathogenic agents which have led to the AIDS epidemic and other world health crisis.
In The Extremely Unfortunate Skull Valley Incident the authors trace history of the secret war against and the terrible experiments performed upon their own citizens as well as the Third World populations. But Skull Valley does more than that. In their research the father-son team discovered the links between AIDS and many other diseases now increasing dramatically worldwide. Chief among these is myalgic encephalomyelitis/fibromyalgia dismissively labelled " chronic fatigue syndrome" by the government researchers.
In addition to AIDS and ME/FM the Scotts also demonstrate the etiological links to other neurosystemic degenerative diseases such as Alzheimer's, multiple sclerosis, Parkinson's, diabetes, schizophrenia, Crohn's-colitis, etc. All are said to be "of no known cause and having no known cure". Researchers Donald and William Scott have discovered that there is a "known cause" and there may well be a cure.
The cause is a little known organism called the "mycoplasma" which has the capacity to access genetically pre-disposed cells and to destroy them by up-taking pre-formed sterols. This process is the "degeneration" which characterizes all of the diseases under study. When the cells of the endocrine system are destroyed by a sufficient concentration of mycoplasmas, the balance of the physiological balance is altered and the immune system loses its ability to defend the infected victim, and co-factors such as the human immune-deficiency virus (HIV), and those with cause pneumonia, are free to have their way, leading to full-blown AIDS.
"... a fascinating dissection of almost every aspect of the doctor-patient relationship.... strongly recommended reading for all health care workers interested in this rapidly evolving field."Â -- Queen's Quarterly
"This outstanding discussion of important current medical issues is a valuable addition to academic and professional libraries." -- Choice
"... an important contribution to bioethics... certain to provoke controversy in the field."Â -- Medical Humanities Review
"Lucid and well-argued... " -- Religious Studies Review
This book heralds the imminent demise of "doctor knows best." In it, Robert M. Veatch proposes a postmodern medicine in which decisions about patient care will routinely involve both doctor and patient -- not only in ethically complex cases such as the termination of life-sustaining treatment, but in everyday care as well.
Wondergenes is a serious, accessible introduction to the social and personal implications of genetic engineering. Mehlman weighs the social and economic costs of the many proposals to regulate or limit genetic engineering and provides six concrete policy recommendations -- from professional licensing to a ban on germ-line enhancement -- that propose to make the future of genetic enhancement more equitable and safe.
In Ethical Foundations of Palliative Care for Alzheimer Disease, leading ethicists and clinicians from the United States and Europe explore ethical and scientific concerns about the diagnosis and prognosis of Alzheimer disease, challenges arising from applying palliative procedures to its symptoms, key philosophical and theological concepts central to our understanding of the disease and to end-of-life decisions, and the changing patterns of relevant medical, social, and economic policies. Cross-cultural, multidisciplinary, and state-of-the-art, this volume is a unique and important resource for bioethicists, clinicians, and policy makers everywhere.
Contributors: David A. Bennahum, M.D., University of New Mexico; Pierre Boitte, Ph.D., Catholic University of Lille, France; Roger A. Brumback, M.D., Creighton University Medical Center; Wim J. M. Dekkers, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Elizabeth Furlong, R.N., Ph.D., J.D., Creighton University Medical Center; Eugenijus Gefenas, M.D., Ph.D., Vilnius University, Lithuania; Bert Gordijn, Ph.D., University Medical Centre Nijmegen, The Netherlands; Amy M. Haddad, R.N., Ph.D., Creighton University Medical Center; Søren Holm, M.D., Ph.D., Dr.Med.Sci., University of Manchester; Franz J. Illhardt, D.D., Ph.D., Freiburg University; Rien Janssens, Ph.D., University Medical Centre Nijmegen, The Netherlands; Givi Javashvili, M.D., Ph.D., State Medical Academy of Georgia, Tbilisi; Judith Lee Kissell, Ph.D., Creighton University Medical Center; Gunilla Nordenram, D.D.S., Ph.D., Karolinska Institute, Stockholm; Richard L. O'Brien, M.D., Creighton University Medical Center; Marcel G. M. Olde Rikkert, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Winifred J. Ellenchild Pinch, R.N., Ed.D., Creighton University Medical Center; Patricio F. Reyes, M.D., Creighton University Medical Center; Anne-Sophie Rigaud, M.D., Ph.D., Hôpital Broca, Paris; Linda S. Scheirton, Ph.D., Creighton University Medical Center; Jos V. M. Welie, M.Med.S., J.D., Ph.D., Creighton University Medical Center.
Maxwell J. Mehlman considers the promises and perils of using genetic engineering in an effort to direct the future course of human evolution. He addresses scientific and ethical issues without choosing sides in the dispute between transhumanists and their challengers. However, Transhumanist Dreams and Dystopian Nightmares reveals that radical forms of genetic engineering could become a reality much sooner than many people think, and that we need to encourage risk-management efforts.
Whether scientists are dubious or optimistic about the prospects for directed evolution, they tend to agree on two things. First, however long it takes to perfect the necessary technology, it is inevitable that humans will attempt to control their evolutionary future, and second, in the process of learning how to direct evolution, we are bound to make mistakes. Our responsibility is to learn how to balance innovation with caution.-- Michael A. Goldman
Rather than challenging authority, she says, the bioethics movement was an aid to authority, in that it allowed medical doctors and researchers to proceed on course while bioethicists managed public fears about medicine's new technologies. That is, the public was reassured by bioethical oversight of biomedicine; in reality, however, bioethicists belonged to the same mainstream that produced the doctors and researchers whom the bioethicists were guiding.
In issues ranging from ordinary chairside decision making to HIV/AIDS and ethical business practices, the first edition of this book has guided thousands of dentists, dental hygienists, students, and other oral health care practitioners to an understanding of the essential practice of ethics.
Now a revised, updated, and expanded edition of Dental Ethics at Chairside responds to the challenges of oral health care in the new century with chapters on managed care, confidentiality and electronic record-keeping, among other important topics.
In recent years, there have been major outbreaks of whooping cough among children in California, mumps in New York, and measles in Ohio's Amish country—despite the fact that these are all vaccine-preventable diseases. Although America is the most medically advanced place in the world, many people disregard modern medicine in favor of using their faith to fight life threatening illnesses. Christian Scientists pray for healing instead of going to the doctor, Jehovah's Witnesses refuse blood transfusions, and ultra-Orthodox Jewish mohels spread herpes by using a primitive ritual to clean the wound. Tragically, children suffer and die every year from treatable diseases, and in most states it is legal for parents to deny their children care for religious reasons. In twenty-first century America, how could this be happening?
In Bad Faith, acclaimed physician and author Dr. Paul Offit gives readers a never-before-seen look into the minds of those who choose to medically martyr themselves, or their children, in the name of religion. Offit chronicles the stories of these faithful and their children, whose devastating experiences highlight the tangled relationship between religion and medicine in America. Religious or not, this issue reaches everyone—whether you are seeking treatment at a Catholic hospital or trying to keep your kids safe from diseases spread by their unvaccinated peers.
Replete with vivid storytelling and complex, compelling characters, Bad Faith makes a strenuous case that denying medicine to children in the name of religion isn't just unwise and immoral, but a rejection of the very best aspects of what belief itself has to offer.
Against all odds, Jewish health providers struggled to avoid the worst through innovative steps to save lives. Despite the removal of their equipment, drugs, and other resources, they organized health care and sanitary hygienic measures. Doctors were forced to conceal cases, falsify diagnoses and cause of death in order to save lives. This important study explores the role of the International Red Cross in typhus epidemics during and after World War I and World War II. It details the widespread complicity of foreign companies in the Nazi typhus research. Finally, the author stresses the importance of monitoring and holding accountable the medical profession, researchers, and drug companies that continue to invest in research on biological agents as weapons of war."
Examining the tension between incompetent patients' prior wishes and their current best interests as well as other challenges to advance directives, Robert S. Olick offers a comprehensive argument for favoring advance instructions during the dying process. He clarifies widespread confusion about the moral and legal weight of advance directives, and he prescribes changes in law, policy, and practice that would not only ensure that directives count in the care of the dying but also would define narrow instances when directives should not be followed. Olick also presents and develops an original theory of prospective autonomy that recasts and strengthens patient and family control.
While focusing largely on philosophical issues the book devotes substantial attention to legal and policy questions and includes case studies throughout. An important resource for medical ethicists, lawyers, physicians, nurses, health care professionals, and patients' rights advocates, it champions the practical, ethical, and humane duty of taking advance directives seriously where it matters most-at the bedside of dying patients.
* Is suicide a voluntary act?
* Should physicians be permitted to prevent it?
* Should they be authorized to abet it?
The author's thoughtful analysis of these questions consistently holds forth patient autonomy as paramount; therefore, he argues, patients should not be prevented from exercising their free will, nor should physicians be permitted to enter the process by prescribing or providing the means for voluntary death.
Dr. Szasz predicts that we will look back at our present prohibitory policies toward suicide with the same amazed disapproval with which we regard past policies toward homosexuality, masturbation, and birth control. This comparison with other practices that started as sins, became crimes, then were regarded as mental illnesses, and are now becoming more widely accepted, opens up the discussion and understanding of suicide in a historical context. The book explores attitudes toward suicide held by the ancient Greeks and Romans, through early Christianity and the Reformation, to the advent of modern psychiatry and contemporary society as a whole. Our tendency to define disapproved behaviors as diseases has created a psychiatric establishment that exerts far too much influence over how and when we choose to die. Just as we have come to accept the individual's right to birth control, so too must we accept his right to death control before we can call our society humane or free.
Each chapter has a uniform structure which makes it ideal for use in learning and teaching. "10 Things You Need to Know About..." introduces the key points of the topic, Setting the Scene explains where the issues occur in real life and why doctors need to understand them, and then key definitions are followed by explanations of different scenarios. The book uses real cases to illustrate points and summary boxes to highlight key issues throughout.
Whilst maintaining its rigorous attention to detail, Everyday Medical Ethics and Law is an easy read reference book for busy, practising doctors.
Humans have engaged in biological self-improvement since long before recorded history, from the impotence-curing wild lotus brew of the ancient Egyptians to the herbal energy drink favored by early Olympians. Now biomedical enhancements are pushing the boundaries of possibility and acceptability. Where do we draw the line? How do we know the true ramifications of pioneering medicine? What price are we willing to pay for perfection?
Maxwell J. Mehlman’s provocative examination of these issues speaks to fundamental questions of what it means to be human. He finds public officials ill-equipped to handle the ethical, scientific, and public policy quandaries of biomedical enhancement. Instead of engaging difficult questions of morality, access, fairness, and freedom, elected officials have crafted toothless and counterproductive laws and regulations.
Mehlman outlines policy options to boost the societal benefits and minimize the risks from these technologies. In the process, he urges the public to face the ethical issues surrounding biomedical enhancement, lest our quest for perfection compromise our very humanity.
Bacillus anthracis is lethal. Animals killed by the disease are buried deep underground, where anthrax spores remain viable for decades or even centuries and, if accidentally disturbed, can cause new infections. But anthrax can be deliberately aerosolized and used to kill—as it was in the United States in 2001.
Historian and veterinarian Susan D. Jones recounts the life story of anthrax through the biology of the bacillus; the political, economic, geographic, and scientific factors that affect anthrax prevalance; and the cultural beliefs about the disease that have shaped human responses to it. She explains how Bacillus anthracis became domesticated, discusses what researchers have learned from numerous outbreaks, and analyzes how the bacillus came to be weaponized and what this development means for the modern world.
Jones compellingly narrates the biography of this frightfully hardy disease from the ancient world through the present day.
Most people rarely think about their height beyond a little wishing and hoping. But for the parents of children who are ridiculed by their peers for being extraordinarily tall or extraordinarily short, height can cause great anguish. For decades, the medical establishment has responded to these worries by prescribing controversial treatments and therapies for children who fall outside of the ?normal? height range. While some have benefited, many have suffered from devastating side effects.
In this riveting book, Susan Cohen and Christine Cosgrove provide a voice for the parents, doctors, scientists, and pharmaceutical companies involved in these experimental treatments. They also tell the story of the boys and girls themselves, many of them now grown, who were subjected to a wide range of non-FDA-approved medical procedures. These treatments? which consisted of extreme doses of estrogen, pituitary glands taken from both animals and human cadavers, and testosterone injections?often had disastrous side effects.
Who is to say how tall is too tall, and how short is too short? For many of the individuals represented in this book, the answers have been clear?and they are grateful to the medical industry for improving upon nature. For others, left in the wake of this same science, the answers are fueled by tragic regret. The authors explore the dueling motives behind these procedures? with parents desperate to help their children ?fit in? and doctors and scientists hungry for scientific breakthroughs. Combining extensive research and in-depth interviews, Normal at Any Cost is the first book to place a human face on this complex and ethically charged medical history.
"The prospect of being the human parts drawer society reaches into to cure its neediest patients would drive anyone mad." - Kelsey Reed, Life First
Strong-willed Kelsey Reed must escape tonight or tomorrow her government will take her kidney and give it to someone else.
She’ll need the help of her true love, Luke, to make this dangerous escape. This dystopian future Kelsey lives in was forged by survivors of pandemics that wiped out 80 percent of the world's population. Here, life is valued above all else. The mentally ill are sterilized, abortions are illegal and those who refuse to donate an organ when told are sentenced to death.
Determined not to give up her kidney or die, Kelsey and Luke enlists the help of a dodgy doctor to escape. The trio must disable the tracking chip in Kelsey's arm for her to flee undetected. If they fail, Kelsey could be stripped of Luke, her kidney and everything else she holds dear.
This page-turning thriller with a touch of romance, is the first in the Life First dystopian book series. The thrills and romance continue in our dystopian future in Second Life (book 2 of the series) and Third Life: Taken (book 3 of the series).
* * *
"Life First is a poignant, riveting, thought provoking read that had me entranced from page one until the very end of the book."
-- 5 Stars, Griffin's Honey Blog
"Life First gripped you like King Kong and would not let go until you had finished the book."
~ A 2014 B&P Reader's Choice Award Nominee ~
~ BRAG Medallion winner ~
In Shrink Rap, three psychiatrists from different specialties provide frank answers to questions such as:
• What is psychotherapy, how does it work, and why don't all psychiatrists do it?• When are medications helpful?• What happens on a psychiatric unit?• Can Prozac make people suicidal?• Why do many doctors not like Xanax?• Why do we have an insanity defense?• Why do people confess to crimes they didn't commit?
Based on the authors’ hugely popular blog and podcast series, this book is for patients and everyone else who is curious about how psychiatrists work. Using compelling patient vignettes, Shrink Rap explains how psychiatrists think about and address the problems they encounter, from the mundane (how much to charge) to the controversial (involuntary hospitalization). The authors face the field’s shortcomings head-on, revealing what other doctors may not admit about practicing psychiatry.
Candid and humorous, Shrink Rap gives a closeup view of psychiatry, peering into technology, treatments, and the business of the field. If you've ever wondered how psychiatry really works, let the Shrink Rappers explain.
Doctor, Please Help Me Die traces the history of patients seeking relief from suffering at the end of life and discusses how cultural and professional customs have inhibited many doctors from helping their patients at the end. Preston shows how most doctors fail their patients by not discussing dying with them and by refusing to consider legal physician aid in dying—ultimately deceiving the public in their refusal to help patients die. He discusses the religious, political, and legal battles in this part of the culture war and gives advice to patients on how to gain peaceful dying.
Preston presents a strong argument for why every citizen who is dying ought to be extended an inalienable right to die peacefully, and why every physician has an ethical obligation to assist patients who want to exercise this right safely, securely, and painlessly.