Solomon’s startling proposition is that diversity is what unites us all. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter.
All parenting turns on a crucial question: to what extent parents should accept their children for who they are, and to what extent they should help them become their best selves. Drawing on forty thousand pages of interview transcripts with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges. Whether considering prenatal screening for genetic disorders, cochlear implants for the deaf, or gender reassignment surgery for transgender people, Solomon narrates a universal struggle toward compassion. Many families grow closer through caring for a challenging child; most discover supportive communities of others similarly affected; some are inspired to become advocates and activists, celebrating the very conditions they once feared. Woven into their courageous and affirming stories is Solomon’s journey to accepting his own identity, which culminated in his midlife decision, influenced by this research, to become a parent.
Elegantly reported by a spectacularly original thinker, Far from the Tree explores themes of generosity, acceptance, and tolerance—all rooted in the insight that love can transcend every prejudice. This crucial and revelatory book expands our definition of what it is to be human.
Fully revised, and incorporating the dramatic developments of the last fifteen years, The Story of Psychology is a graceful and absorbing chronicle of one of the great human inquiries—the search for the true causes of our behavior.
Referring to the Americans with Disabilities Act as "every American''s insurance policy," the authors recount the genesis of this civil rights approach to disability, from the almost forgotten disability activism of the 1930s to the independent living movement of the 1970s to the call for disability pride of the 1990s. Like other civil rights struggles, the disability rights movement took place in the streets and in the courts as activists fought for change in the schools, the workplace, and in the legal system. They continue to fight for effective access to the necessities of everyday life -- to telephones, buses, planes, public buildings, restaurants, and toilets.
The history of disability rights mirrors the history of the country. Both World Wars sparked changes in disability policy and changes in medical technology as veterans without without limbs and with other disabilities return home. The empowerment of people with disabilities has become another chapter in the struggles over identity politics that began in the 1960s. Today, with the expanding ability of people with disabilities to enter the workforce, and a growing elderly population increasingly significant at a time when HMOs are trying to contain healthcare expenditures.
Key Features: Covers 10 core curriculum areas Features 2010 approved core standards Provides 300 test questions and answers Describes key terms and concepts Includes tables and charts to clarify information
Certified Rehabilitation Counselor Examination Preparation is written by rehabilitation counselors and content experts well known in their field for teaching effectiveness, research, and scholarship. It is geared for master's and doctoral-level students in rehabilitation counseling, psychology and disability studies, as well as Licensed Professional Counselors. It will also be of value to master's-level students in their day-to-day preparation for individual classes in theory, assessment, and job placement.
Note: This book is not endorsed or in any other way supported by the Commission on Rehabilitation Counselor Certification (CRCC)."
Now, in The Price of Silence, she takes a devastating look at how we address mental illness, especially in children, who are funneled through a system of education, mental healthcare, and juvenile detention that leads far too often to prison. In the end she asks one central question: If there's a poster child for cancer, why can’t there be one for mental illness? The answer: stigma. She is speaking in a way that we cannot help but hear, and she won't stop until something changes.
An extraordinary narrative history of autism: the riveting story of parents fighting for their children ’s civil rights; of doctors struggling to define autism; of ingenuity, self-advocacy, and profound social change
Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.
It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity.
This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.
By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability.
Born with a rare genetic mutation called Usher Syndrome type III, Rebecca Alexander has been simultaneously losing both her sight and hearing since she was a child, and was told that she would likely be completely blind and deaf by age 30. Then, at 18, a fall from a window left her athletic body completely shattered.
None of us know what we would do in the face of such devastation. What Rebecca did was rise to every challenge she faced. She was losing her vision and hearing and her body was broken, but she refused to lose her drive, her zest for life and – maybe most importantly – her sense of humor. Now, at 35, with only a sliver of sight and significantly deteriorated hearing, she is a psychotherapist with two masters’ degrees from Columbia University, and an athlete who teaches spin classes and regularly competes in extreme endurance races. She greets every day as if it were a gift, with boundless energy, innate curiosity, and a strength of spirit that have led her to places we can't imagine.
In Not Fade Away, Rebecca tells her extraordinary story, by turns harrowing, funny and inspiring. She meditates on what she’s lost—from the sound of a whisper to seeing a sky full of stars, and what she’s found in return—an exquisite sense of intimacy with those she is closest to, a love of silence, a profound gratitude for everything she still has, and a joy in simple pleasures that most of us forget to notice.
Not Fade Away is both a memoir of the senses and a unique look at the obstacles we all face—physical, psychological, and philosophical—exploring the extraordinary powers of memory, love, and perseverance. It is a gripping story, an offering of hope and motivation, and an exquisite reminder to live each day to its fullest.
Now available for the first time in eBook format 978-0-203-07788-7.
Each activity in this inspiring and practical book is SAFE—Sensory-motor, Appropriate, Fun and Easy—to help develop and organize a child’s brain and body. Whether your child faces challenges with touch, balance, movement, body position, vision, hearing, smell, and taste, motor planning, or other sensory problems, this book presents lively and engaging ways to bring fun and play to everyday situations.
This revised edition includes new activities, along with updated information on which activities are most appropriate for children with coexisting conditions including Asperger’s and autism, and more.
The scar from where the bullet entered my back is still there.
Jerry McGill was thirteen years old, walking home through the projects of Manhattan’s Lower East Side, when he was shot in the back by a stranger. Jerry survived, wheelchair-bound for life; his assailant was never caught. Thirty years later, Jerry wants to say something to the man who shot him.
I have decided to give you a name.
I am going to call you Marcus.
With profound grace, brutal honesty, and devastating humor, Jerry McGill takes us on a dramatic and inspiring journey—from the streets of 1980s New York, where poverty and violence were part of growing up, to the challenges of living with a disability and learning to help and inspire others, to the long, difficult road to acceptance, forgiveness, and, ultimately, triumph.
I didn’t write this book for you, Marcus. I wrote this for those who endure.
Those who manage. Those who are determined to move on.
HK Derryberry came into the world with the odds stacked heavily against him. He was taken from his unmarried mother’s womb three months prematurely when she was killed in a car wreck. After ninety-six days of seesawing between life and death, HK’s grandmother took him home.
One Saturday morning Jim Bradford, a successful businessman in his mid-fifties, happens into Mrs. Winner’s Chicken and Biscuits and sees a nine-year-old’s head pressed down against a black plastic boom box with a crooked antenna and three strips of silver duct tape stretched across the battery cover. He can’t help but notice the long, white plastic braces on each of the child’s legs. Mr. Bradford learns that HK’s grandmother is forced to bring him to the fast-food restaurant where she works, leaving him to sit alone all day at a small table, with only his boom box for company. On subsequent Saturdays Jim feels drawn back to the restaurant to meet with HK and begins spending every weekend with him.
Eventually it becomes apparent that buried beneath HK’s severe disabilities is one spectacular ability. He is diagnosed with Highly Superior Autobiographical Memory (HSAM), which involves superlative powers of recollection that enable him to remember everything that has happened to him since the age of three. Less than one hundred people have been diagnosed with HSAM, but none of them have the physical disabilities of HK Derryberry.
This workbook provides more than 50 questions and exercises designed to empower those with physical loss and disability to better understand and accept their ongoing processes of loss and recovery. The exercises in Coping with Physical Loss and Disability were distilled from ten years of clinical social work experience with clients suffering from quadriplegia, paraplegia, amputation, cancer, severe burns, HIV/AIDs, and neuro-muscular disorders arising from accidents, injury, and disease. About the Author
Rick Ritter, MSW, a disabled veteran and social worker, has worked with more than a hundred clients who have experienced physical loss and disability. This workbook is a distillation of the very best questions and exercises to draw the client towards re-taking control of their life. He has competed in international events for disabled athletes. Ritter was also a major contributor to "got parts? An Insider's Guide to Managing Life Successfully with Dissociative Identity Disorder." He currently resides in Ft. Wayne, Indiana. Series Info
"Coping with Physical Loss and Disability: A Workbook" is the second book in the "New Horizons in Therapy Series." This series is specifically designed to empower clients to work on their own in a therapeutic setting. As many therapists will state, it's often what the client does outside the session that can make the biggest difference in recovery. What People Are Saying
This workbook is a very good stimulus for focusing on issues that are crucial for better coping with loss and disability. Just putting the questions with the blanks together is a great opportunity for self-reflection and might greatly help people raise their consciousness. As I believe the saying goes 'If you do not help yourself, then no one will be able to help you.'"
-Beni R. Jakob, Ph.D, Israeli Arthritis Foundation (INBAR)
"Ritter provides a valuable self-care plan for those suffering from the loss of physical capacity. He also shows readers how to find the mental, emotional and spiritual encouragement critical to the healing process." -Georgiann Baldino, Author and cancer support-group facilitator
"Losing one's bodily integrity or functioning ('physical loss') provokes mourning and a distorted self-image. The horror and recoil that disabilities elicit in the healthy only compound the victim's sense of deprivation and worthlessness. Though slender, the workbook is indispensable to victims of physical loss, their nearest and dearest, medical staff, and psychotherapists or grief counselors."
-Sam Vaknin, Ph.D., author of Malignant Self Love: Narcissism Revisited
"Rick Ritter captures the depth of the emotional pain in the aftermath of physical loss and disability. This workbook format will surely provide a sense empowerment to those who feel helpless in these situations."
-Rev. James W. Clifton, Ph.D., LCSW
"I found the workbook useful in addressing the various aspects of the physical loss. The examples given by the author are very relevant and will help the sufferer relate to similar situations. I recommend the workbook to those who are trying to heal from past traumas or to those who are trying to help their near and dear heal."
- S.V. Swamy, Holistic Healer and editor of Homeopathy For Everyone
I am aware that every child is different and every instance of autism is unique. That means there cannot be a set “manual” for how to deal with autistic children, and this book doesn’t pretend to be one. But there are common themes, and it is my hope that some of the strategies we have used will work for your child, while others — even if they do not work for you — will point you in a helpful direction for coming up with your own strategies.
Most of all, I wish to convey that there really is hope. We have gone from a situation of having our child diagnosed as severely autistic and being told that he should attend a Special School to now wondering what kind of job he will choose to do one day. His transformation has been amazing. So please know that the diagnosis of autism need not mark the end of your dreams for your child. Your child is a unique wonderful being who sees the world very differently — and there is a place for him in it.
For those of you who do not live with autism every day, I believe you too would find this book enlightening and helpful in understanding a little more about the special people who are on the autistic spectrum.
My hope is that the ideas I have outlined in this book may help other parents to connect with their children as we have managed to do with our son. I hope that it will help you not give up on those dreams of the life you thought you could have, with your beautiful child, before the diagnosis sent you reeling.
The Supreme Court decided that schools were required only to provide enough help for children with disabilities to pass from grade to grade. The Court reversed the lower courts' rulings, which had granted Amy an interpreter, setting a precedent that could affect the quality of education for all individuals with disabilities.
From the time Amy entered kindergarten in Peekskill, New York, her parents battled with school officials to get a sign language interpreter in the classroom. Nancy and Clifford Rowley, also deaf, struggled with officials for their own right to a communications process in which they could fully participate. Stuck in limbo was a bright, inquisitive child, forced to rely on partial lipreading of rapid classroom instruction and interaction, and sound amplifiers that were often broken and always cumbersome.
R.C. Smith chronicles the Rowley family's dealings with school boards, lawyers, teachers, expert consultants, advocates, and supporters, and their staunch determination to get through the exhaustive process of presenting the case time after time to school adjudicative bodies and finally the federal courts. The author also documents his own "coming to awareness" about how the "able" see the "disabled."
In the series Health, Society, and Policy, edited by Sheryl Ruzek and Irving Kenneth Zola.
This is the story of Michael Kennedy's life. Born in 1960 with significant disabilities, he describes his early experiences living in three different institutions for the mentally retarded and how he had to become his own advocate if he was going to survive. He soon realized that, unlike most of the others in institutions, he could make his voice heard. He had to speak up to help himself and other individuals with developmental disabilities to learn about their rights, and how to prevent themselves from becoming trapped forever within complicated state bureaucracies.
After moving out of the last institution into various types of supported living settings, Michael describes how he found new friendships, went to school, got a "real" job, and began to aspire to having full control of his own life.
"I want to let people know how the state system used to be and that institutions must never be reopened." This is a book about hard work, resilience, and hope. It is an extraordinary life story, but told by an ordinary man with a clear mission to help others like himself.
As the senior vice president of Walgreens, Randy Lewis created thousands of full-time jobs for people with disabilities. No Greatness without Goodness offers a firsthand account of what it takes to lead with courage in order to change people’s lives for the better. Randy’s motto is “What’s the use of having power if you don’t use it to do good?” In this book, you’ll learn how to start working for good, no matter where you are or how much power you hold.
Psychology from an Empirical Standpoint is Brentano’s most important and brilliant work. It helped to establish psychology as a scientific discipline, but did so in a highly original and distinctive manner by arguing for a form of introspectionism. Brentano argued that consciousness is always unified and that the hallmark of the mind is that one’s thoughts are always directed towards something – his famous theory of ‘intentionality’ – arguments that have deep implications not just for philosophy but psychology, cognitive science and consciousness studies.
With a new foreword by Tim Crane.
Crash Course in Library Services to People with Disabilities will help librarians get up to speed in understanding disabled persons and what they can do to make library premises and holdings more accessible to them. It provides basic information on the different types of mental and physical disabilities a librarian might encounter, then offers a range of exemplary policies, services, and programs for people with disabilities—efforts that are in place and working across the country.
Yet depictions of disability have remained largely unchanged since the 1920s. Focusing almost exclusively on the medical aspect of injury or illness, the disability profile in fact and fiction leads inevitably to an inspiring moment of "overcoming." According to Riley, this cliche plays well with a general audience, but such narratives, driven by prejudice and pity, highlight the importance of "fixing" the disability and rendering the "sufferer" as normal as possible. These stories are deeply offensive to persons with disabilities. Equally important, misguided coverage has adverse effects on crucial aspects of public policy, such as employment, social services, and health care.
Powerful and influential, the media is complicit in this distortion of disability issues that has proven to be a factor in the economic and social repression of one in five Americans. Newspapers and magazines continue to consign disability stories to the "back of the book" health or human-interest sections, using offensive language that has long been proscribed by activists. Filmmakers compound the problem by featuring angry misfits or poignant heroes of melodramas that pair love and redemption. Publishers churn out self-help titles and memoirs that milk the disability theme for pathos. As Riley points out, all branches of the media are guilty of the same crude distillation of the story to serve their own, usually fiscal, ends.
Riley's lively inside investigation illuminates the extent of the problem while pinpointing how writers, editors, directors, producers, filmmakers, advertisers and the executives who give their marching orders go wrong, or occasionally get it right. Through a close analysis of the technical means of representation, in conjunction with the commentary of leading voices in the disability community, Riley guides future coverage to a more fair and accurate way of putting the disability story on screen or paper. He argues that with the "discovery" by Madison Avenue that the disabled community is a major consumer niche, the economic rationale for more sophisticated coverage is at hand. It is time, says Riley, to cut through the accumulated stereotypes and find an adequate vocabulary that will finally represent the disability community in all its vibrant and fascinating diversity.
The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty.
Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals.
Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding.
A Volume in the American Sociological Association's Rose Series in Sociology
Watch the video documentary of a few participants from Preemie Voices at www.saigalpreemievoices.com
—Daniel H. Pink, author of Drive and A Whole New Mind
“Illuminating….Piers Steel shows us the secrets of procrastination, how it affects us and how we will, one day, be able to prevail.”
—Dan Ariely, author of The Upside of Irrationality and Predictably Irrational
Using a mix of psychology, evolutionary biology, self-help, and more than a decade of research, Dr. Piers Steel, the world’s foremost authority on procrastination, offers a tried and true method helping us to identify, understand, and break free of our self-destructive bad habits and create more positive lives for ourselves.
Elegantly woven throughout the odyssey are riveting memories of terrifying maternal abandonment, fierce sisterly loyalty, and astonishing forgiveness. Rachel Simon brings to light the almost invisible world of intellectual disability, finds unlikely heroes in everyday life, and, without sentimentality, portrays Beth as the endearing, feisty, independent person she is. This heartwarming book about the unbreakable bond between two very different sisters takes the reader on an inspirational journey at once unique and universal.
Writing Deafness examines previously overlooked literature by deaf authors, who turned to writing to find a voice in public discourse and to demonstrate their intelligence and humanity to the majority. Hearing authors such as James Fenimore Cooper, Lydia Huntley Sigourney, Herman Melville, and Mark Twain often subtly took on deaf-related issues, using deafness to define not just deaf others, but also themselves (as competent and rational), helping form a self-consciously hearing identity. Offering insights for theories of identity, physical difference, minority writing, race, and postcolonialism, this compelling book makes essential reading for students of American literature and culture, deaf studies, and disability studies.
“Traces the cultural history of deafness...full of references and well-indexed.”--SciTech Book News.
The deaf community in the West has endured radical changes in the past centuries. This work of history tracks the changes both in the education of and the social world of deaf people through the years. Topics include attitudes toward the deaf in Europe and America and the evolution of communication and language.
Of particular interest is the way in which deafness has been increasingly humanized, rather than medicalized or pathologized, as it was in the past. Successful contributions to the deaf and non-deaf world by deaf individuals are also highlighted.
The volume is organized into four sections. The first section presents the importance of test adaption and construction in order to assess Positive Psychology constructs, with a special focus on well-being as a core construct. The second section summarizes a group of research studies carefully designed to predict academic achievement applying Positive Psychology constructs. The third section outlines a set of studies intended to develop flow, resilience, social skills and positive emotions in children at risk. And finally the fourth and last section introduces two points of view focused on communities in order to assess positive dimensions and to promote positive behaviors.
This volume, aimed at researchers and Psychology, Education, Health and the Social Sciences students, is a useful tool for people interested in the development of Positive Psychology in Latin American countries.
The new edition of this original Australian text continues to offer the most balanced coverage of theory and research for Australian students and educators and appeals to students from many backgrounds. It covers the domains of development including neurological, cognitive, social, physical and personality.
The text is organised chronologically by chapter. Within each chapter content is organised topically. This structure allows for a degree of flexibility and lecturers can choose the way they wish to approach the content, whether it is topically or chronologically.
Harriet McBryde Johnson isn't sure, but she thinks one of her earliest memories was learning that she will die. The message came from a maudlin TV commercial for the Muscular Dystrophy Association that featured a boy who looked a lot like her. Then as now, Johnson tended to draw her own conclusions. In secret, she carried the knowledge of her mortality with her and tried to sort out what it meant. By the time she realized she wasn't a dying child, she was living a grown-up life, intensely engaged with people, politics, work, struggle, and community.
Due to a congenital neuromuscular disease, Johnson has never been able to walk, dress, or bathe without assistance. With help, however, she manages to take on the world. From the streets of Havana, where she covers an international disability rights conference, to the floor of the Democratic National Convention in Chicago, to an auditorium at Princeton, where she defends her right to live against philosopher Peter Singer, she lives a life on her own terms. And along the way, she defies and debunks every popular assumption about disability.
This unconventional memoir opens with a lyrical meditation on death and ends with a surprising sermon on pleasure. In between, we get the tales Johnson most enjoys telling from her own life. This is not a book "about disability" but it will surprise anyone who has ever imagined that life with a severe disability is inherently worse than another kind of life.