When Sarah Gray received the devastating news that her unborn son Thomas was diagnosed with anencephaly, a terminal condition, she decided she wanted his death—and life—to have meaning. In the weeks before she gave birth to her twin sons in 2010, she arranged to donate Thomas’s organs. Due to his low birth weight, they would go to research rather than transplant. As transplant donors have the opportunity to meet recipients, Sarah wanted to know how Thomas's donation would be used.
That curiosity fueled a scientific odyssey that leads Sarah to some of the most prestigious scientific facilities in the country, including Harvard, Duke, and the University of Pennsylvania. Pulling back the curtain of protocol and confidentiality, she introduces the researchers who received Thomas’s donations, held his liver in their hands, studied his cells under the microscope.
Sarah’s journey to find solace and understanding takes her beyond her son’s donations—offering a breathtaking overview of the world of medical research and the valiant scientists on the horizon of discovery. She goes behind the scenes at organ procurement organizations, introducing skilled technicians for whom death means saving lives, empathetic counselors, and the brilliant minds who are finding surprising and inventive ways to treat and cure disease through these donations. She also shares the moving stories of other donor families.
A Life Everlasting is an unforgettable testament to hope, a tribute to life and discovery, and a portrait of unsung heroes pushing the boundaries of medical science for the benefit of all humanity.
Sarah Gray is a donor parent; an organ, eye, tissue, and blood donation advocate; and a public speaker. She is the director of communications for the American Association of Tissue Banks (AATB) in McLean, Virginia, and regularly speaks around the country. She lives in Washington, DC, with her husband, Ross; their son, Callum; and their daughter, Jocelyn. SarahGray.com
Co-written with his wife Joan Bolzan, this riveting account details Scott's courageous fight to build a new life after losing all memories of his past, his wife and children, his likes and dislikes, and even how to navigate the fast pace and technology of the 21st century.
Readers of In an Instant by Bob and Lee Woodruff, Jill Bolte Taylor's My Stroke of Insight, and Richard M. Cohen's Blindsided will be profoundly moved by My Life, Deleted, a remarkable story of tragedy, hope, love, and perseverance.
Biehl writes with honesty and humor while sharing personal essays that poignantly describe the roller coaster of her cancer journey over the past eight years. After revealing how she recovered from the shock and numbness and decided to face the reality of living with MDS, Biehl leads others through her experiences as she dealt with the painful and debilitating side effects of her treatments and medications, became her own advocate, developed a love/hate relationship with chemo, embraced the comfort provided by her loyal service dog, and ultimately learned to seize the day. Included are lists of resources on natural treatments, cancer drugs, and organizations that can help.
Life Is ShortEat the Donut! shares anecdotes and helpful insights gleaned by a cancer survivor that gently remind all of us that life is a precious gift.
This book isnt just about a daughters difficult relationship with her father and his death. Its about exercising authenticity in the difficult conversations that can only strengthen the bond between a father and a daughter, and bring them both the peace they were longing for all along.
This book is for anyone who has experienced the loss of a parent, wants to repair a damaged parent/child relationship, or is looking for comfort and companionship through difficult conversations with loved ones at the end of their life cycle.
The phone rings. The doctor from California is on the line. “Are you ready Amanda?” The two people Amanda Baxley loves the most had begged her not to be tested—at least, not now. But she had to find out.
If your family carried a mutated gene that foretold a brutal illness and you were offered the chance to find out if you’d inherited it, would you do it? Would you walk toward the problem, bravely accepting whatever answer came your way? Or would you avoid the potential bad news as long as possible?
In Mercies in Disguise, acclaimed New York Times science reporter and bestselling author Gina Kolata tells the story of the Baxleys, an almost archetypal family in a small town in South Carolina. A proud and determined clan, many of them doctors, they are struck one by one with an inscrutable illness. They finally discover the cause of the disease after a remarkable sequence of events that many saw as providential. Meanwhile, science, progressing for a half a century along a parallel track, had handed the Baxleys a resolution—not a cure, but a blood test that would reveal who had the gene for the disease and who did not. And science would offer another dilemma—fertility specialists had created a way to spare the children through an expensive process.
A work of narrative nonfiction, Mercies in Disguise is the story of a family that took matters into its own hands when the medical world abandoned them. It’s a story of a family that had to deal with unspeakable tragedy and yet did not allow it to tear them apart. And it is the story of a young woman—Amanda Baxley—who faced the future head on, determined to find a way to disrupt her family’s destiny.