Letters to ALS: Our Journeys to Hope

Kerry Adams · Dr. Richard Bedlack · Dr. Andrew Eisen · Donna Gallant · Dr. Angela Genge · Kris Jagt · Dr. Melinda Kavanaugh · Shameem Kizar · Linda Leonard · Heather Lucier · Norman MacIsaac · Krista MacMillan · Lana Kim McGeary · Jess McCarthy · Barb Miller · Dr. Colleen O'Connell · Cameron Starritt · Paula Ciampini · Luke Stock · Grace Stock · Sophie Stock · Dr. Michael Strong · Dr. Anu Tandon · Paula Trefiak · Benjamin Webb · Dr. Sammy Winemaker · Dr. Lorne Zinman · ALS Action Canada · ALS Society of Alberta · ALS Society of British Columbia · ALS Society of Canada · ALS Society of Manitoba · ALS Society of New Brunswick and Nova Scotia · ALS Society of Newfoundland and Labrador · ALS Society of Prince Edward Island · ALS Society of Quebec · ALS Society of Saskatchewan · Sophy Olafson

Mar 2026 · Shionogi Canada, Inc.

About this ebook

Letters to ALS: Our Journeys to Hope is a unique new book of deeply personal letters from members of the amyotrophic lateral sclerosis (ALS) community. Presented as “Dear ALS” letters, the collection includes contributions from people living with ALS, family members, clinicians, researchers, and advocates. Together, these voices offer an intimate window into the life-altering realities of ALS, while paying tribute to the extraordinary strength, resilience, and hope that define the ALS community. The book also includes voices from healthcare professionals such as neurologists, researchers, nurses, and multidisciplinary care specialists who play an integral role in the ALS landscape. Their letters offer insight into the emotional connections that drive their work and the progress achieved in advancing care and research.  

Ratings and reviews

This book is inspiring … to read everyone’s perspectives. 💜

Excellent book!