In spite of a popular belief linking chronic illness mainly to aging, most chronic problems extend across the life span. One of every seven men and one of every eight women between the ages of 17 and 44 are limited in their major activity, their ability to work, keep house or go to school, because of a chronic condition. At ages 65 and over, nearly three-fifths of men and two-fifths of women are handicapped. Dr. Royer shows various strategies the chronically ill may use to live with the uncertainty inherent in chronic illness. She also discusses how one might try to overcome or to minimize the salient social consequences of chronic illness, such as stigma and social isolation, in order to get on with their lives.
Brantlinger discusses the current medical and legal trends in sterilization with special emphasis on people with disabilities. She explores the issues surrounding sterilization decisions from the perspectives of judges, lawyers, social workers, doctors, family planners, as well as the families and individuals themselves.
Woven throughout the book are case studies of individuals ranging from mild to severe retardation. She illustrates how ethical issues related to sterilization are framed and which moral values are called upon during decision-making. She ends with guidelines for decision-making. As the most comprehensive and up-to-date work on the subject, this book will be invaluable to professionals in the social services and mental health fields as well as researchers in law, special education, social work, and public health. Individuals confronting these concerns will find the volume instructive as well.
SHOPs in this region present a rather homogenous perception in their organization, leadership, social inclusion, and globalization, despite the marked differences in their societies. SHOPs tends to be domocratic and consensual in nature, and led by elected members with assistance from paid professional and clerical support. The self-help organizations are positively regarded in these countries.
The first part of the book defines and describes developmental disabilities from perspectives relevant to librarians and information professionals. The second part examines key life issues that have a major impact on people with developmental disabilities. This section emphasizes the current trend toward the inclusion of people with developmental disabilities in mainstream society. References to related information sources are included throughout. The third part looks at disabilities from the perspective of the library or other information agency. An appendix lists organizations, agencies, businesses, and libraries that provide additional materials.
Rachel Simon’s sister Beth is a spirited woman who lives intensely and often joyfully. Beth, who has an intellectual disability, spends her days riding the buses in her unnamed Pennsylvania city. The drivers, a lively group, are her mentors; her fellow passengers are her community. One day, Beth asks Rachel to accompany her on the buses for an entire year. This wise, funny, deeply affecting true story is the chronicle of that remarkable time. Rachel, a writer and college teacher whose hyperbusy life camouflaged her emotional isolation, had much to learn in her sister’s extraordinary world. Full of life lessons from which any reader will profit, Riding the Bus with My Sister is "a heartwarming, life-affirming journey through both the present and the past . . . [that] might just change your life" (Boston Herald)
Elegantly woven throughout the odyssey are riveting memories of terrifying maternal abandonment, fierce sisterly loyalty, and astonishing forgiveness. Rachel Simon brings to light the almost invisible world of adults with developmental disabilities, finds unlikely heroes in everyday life, and, without sentimentality, portrays Beth as the endearing, feisty, independent person she is. This heartwarming memoir about the unbreakable bond between two very different sisters takes the reader on an inspirational journey at once unique and universal.
Riding the Bus with My Sister was made into a Hallmark Hall of Fame movie starring Rosie O'Donnell and Andie McDowell, and directed by Anjelica Huston.
---Louis Sass, author of Madness and Modernism
"The scope of this book is daunting, ranging from madness in the ancient Greco-Roman world, to Christianized concepts of medieval folly, through the writings of early modern authors such as Shakespeare, Cervantes, and Descartes, and on to German Romantic philosophy, fin de siè cle French poetry, and Freud . . . Artaud, Duras, and Plath."
"This provocative and closely argued work will reward many readers."
In Revels in Madness, Allen Thiher surveys a remarkable range of writers as he shows how conceptions of madness in literature have reflected the cultural assumptions of their era. Thiher underscores the transition from classical to modern theories of madness-a transition that began at the end of the Enlightenment and culminates in recent women's writing that challenges the postmodern understanding of madness as a fall from language or as a dysfunction of culture.