Here is the book that John Vine and his wife, Joanne, wish they could have consulted when John was first diagnosed with Parkinson’s disease—a nontechnical, personal guide written from the patient’s perspective. Relying on his experiences over the past 12 years, John writes knowledgeably about all aspects of the disease. John also interviewed other Parkinson’s patients and their partners, whose stories and advice he includes throughout the book.
“I wish we’d had John Vine’s book when my brother-in-law was diagnosed. The book is highly informative, unflinchingly honest, and reassuringly optimistic. It’s just what the doctor should have ordered.”—Cokie Roberts, best-selling author and political commentator on ABC News and NPR
“John Vine details, in a compelling and accessible way, his experience with Parkinson’s disease. His book is an extraordinary guide to living successfully with Parkinson’s, and a must read for all who want to better understand the condition. Although diagnosed with Parkinson’s, my father lived an active and productive life until his death at age 94. As the book makes clear, while each patient’s journey is unique, common approaches are indispensable in treating the symptoms of the disease.”—Eric H. Holder, Jr. served as the 82nd Attorney General of the United States from 2009 to 2015
“John Vine has written the best primer I’ve ever read for newly diagnosed Parkinson’s patients and their families. It helps them cope with the shock of diagnosis, gives them (jargon-free) the scientific basics they need to know, describes the symptoms they may experience (making clear that every case is different) and catalogs the resources available to navigate living with Parkinson’s. John humanizes the book by describing his own experience and that of 22 other patients and their partners. I’d urge every neurologist to have copies of Vine’s primer on hand to help new PD on their journey forward.”—Morton Kondracke, author of Saving Milly: Love, Politics and Parkinson’s Disease and a member of the Founders' Council of the Michael J. Fox Foundation
“My husband has PD, and I devoured this book. It’s wise, wonderfully readable, and, above all, helpful. Since John Vine has PD, he speaks with great authority about the challenges, both physical and psychological. If you have Parkinson’s, live with someone who has it, or just know someone battling the disease, A Parkinson’s Primer is for you.”—Lesley Stahl, award-winning television journalist on the CBS News program 60 Minutes
“This is a remarkable book describing the personal experiences of many individuals, including the author, living with Parkinson’s disease. It captures the fact that although there are many possible symptoms in this disease, each person experiences different symptoms and copes with them in various ways. The thoughtful and insightful comments and coping strategies should be helpful for persons with PD, and their partners, regardless of the stage of the disease.”—Stephen Grill, MD, PhD, Director of the Parkinson’s & Movement Disorders Center of Maryland
John M. Vine is a lawyer at Covington & Burling LLP in Washington, DC, where he is the senior member and former head of the firm’s employee benefits group. He was diagnosed with Parkinson’s in 2004.
The author has also addressed some of the social issues related to the disease. This includes dealing with less than perfect physicians and with the negative situations that exist in the insurance industry and Social Security Administration.
To provide real assistance to people with the disease, the author has included a fully illustrated exercise routine designed for people with Parkinson's.
The story begins by describing a young girl's life in England following World War II. In 1950, when Pauline is five years old, her mother dies following surgery to remove a brain tumor. Two years after this event, Pauline is separated from her older brother and sister, when her father sends her to live with an aunt in London. The emotional fallout from these two events causes a great deal of hurt and anger to build in this young girl's heart, preventing her from truly appreciating the kindness of the people trying to help her. All through the years growing up, marriage to her childhood sweetheart and the exciting prospects of a new life in Canada - she keeps the pain within.
Adversity seems to attach itself to Pauline's life until April 1984 when her sister's Bible study group in England start to pray for her. Within a few short weeks, the power of prayer from half-way around the world has a dramatic effect on Pauline's life and many miraculous events occur. A time of emotional healing takes place as Pauline learns to trust in a loving God.
Many happy successful years follow. As Pauline grows in faith, she asks God a question, "What is your plan for my life Lord?" God's answer to her prayer seems to be wait - so she waits. She becomes quite adept at juggling church, home and work and the future looks rosy indeed.
Following her fiftieth birthday, however, Pauline notices a gradual reduction in muscle strength, slight loss of stamina and experiences problems with balance. As the months and years pass, these gradual symptoms increase to the point where she definitely knows something is wrong. Finally in June 1998, Pauline accepts an early retirement package from her employer and goes home to rest. A year later, thanks to her sister-in-law's keen observations, Pauline is diagnosed with Parkinson's disease.
In the months following her diagnosis, Pauline joins a support group for writers and starts to jot down ideas for keeping a positive attitude. This therapeutic exercise is undertaken not just for herself, but with the idea in mind that somehow she may be able to help other people facing similar situations.
Pauline discovers many actual blessings from having Parkinson's disease and writes about them. She develops a deeper relationship with God and begins trusting Him and thanking Him for every precious day.
As family and friends comfort her with their love and support, Pauline again asks God for direction - gently reminding Him that she can no longer afford the luxury of waiting. His answer comes loud and clear...WRITE! Renewed in spirit and blessed with a strong faith, Pauline begins reaching out to others with words of inspiration and encouragement. Starting with a new poem, All Our Days Belong to the Lord, Pauline keeps on writing until the ideas form to share her life story and Removing the Sting is born. ----------------------------------
"REMOVING THE STING is a blend of autobiography, inspiration and encouragement. It contains a mosaic of stories, poetry, prayers and lots of humor. When Pauline Neck was diagnosed with Parkinson's disease in September 1999, she was determined to make the rest of her life totally meaningful.
Drawing on her faith in God, the love of family and support of caring friends, Pauline started jotting down ideas for keeping a positive attitude. She wrote about the benefit of support groups, pet ownership, gardening, cooking, singing - in fact everything she could think of to bring encouragement to herself and others.
A native Briton, Pauline emigrated to Canada in 1966 and has lived and worked in British Columbia for twenty-four years. She is an active member of Women and Words, a local support group for writers and attends Maple Ridge Alliance Church. Pauline is also a member of the Christian Writers Guild of California and the Maple Ridge Parkinson's support group. She says "Yes!" to life every day."
People Living with Parkinsons
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I could have wallowed in self-pity, but I am a fighter and chose eventually to manage my PD. I have adopted a number of Eastern non-traditional approached to deal with my PD. I have a yoga practice, meditate daily, and engage in massage, acupuncture, and chiropractic adjustments. All these different approaches complement my medication, and all contribute to my being very healthy, given the length of time I have had Parkinson’s. I will take you on a journey, my journey, starting with denial to depression to, finally, acceptance.
This book is more than the story of one man’s journey with PD; it is a story of hope and personal transformation. If you permit me, I am going to take you on a journey that began over two decades ago. I have years to travel so do not ask where the destination is or ask if we are there yet. During the course of this book, I will share with you aspects of my life that were previously know to only a small number of people. It is through this intimacy that you will come to better understand and hopefully better deal with adversity that might affect your life.
The only complete and up-to-date book addressing the most common behavioral symptoms of Parkinsonís Disease (PD), including depression, anxiety, hallucinations, disrupted sleep, and compulsive behavior.
When people think about PD they usually picture tremor, shuffling, and other physical changes. But as many as 90% of all Parkinsonís patients also live with behavioral symptoms that few families are prepared to handle. In this fully revised and updated edition of Making the Connection Between Brain and Behavior, Dr. Joseph H. Friedman, a leading expert in PD, explains the most common behavioral issues in down-to-earth, straightforward language, offers the most current research on available therapies and medications, and provides guidance on ways to communicate with your healthcare team for effective treatment.
Now, fully updated and revised throughout and including three new chapters and two new appendices, Making the Connection Between Brain and Behavior includes even more information on a variety of treatment options, including Electroconvulsive Therapy (ECT). It is an essential resource for every person with PD and his or her family.
This one-stop resource provides proven coping skills, first-hand advice, and practical tools, such as worksheets to assess care options, questions to ask doctors, and current listings of care providers.