My CML
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Mayelana nalolu hlelo lokusebenza
I-CML yami ihlinzeka iziguli ezine-Chronic Myeloid Leukemia (CML) ngesisetshenziswa esinezinjongo eziningi nesisebenziseka kalula esihlose ukunika amandla iziguli nemindeni/ abanakekeli bazo ukuze balawule isimo sabo ngendlela efanele.
Idizayinelwe ithimba Losokhemisi be-NHS abasebenza eduze namaqembu abalulekile asekela isiguli e-CML, i-My CML iqukethe isethi yemisebenzi eklanywe ngokukhethekile ukukhuthaza imiphumela yesiguli elungile. Lokhu kubandakanya:
- I-tracker yezimpawu / side effect. Iziguli zingarekhoda ukuthi zizizwa kanjani ngosuku oluthile, kungaba ngendlela yokubhala idayari noma ngokurekhoda amaphuzu (esikalini sika-0-10) ngezimpawu ezithile isib. isicanucanu, isifo sohudo, amajaqamba emisipha njll.
- Isihloli sokusebenzelana kwezidakamizwa. Iziguli noma ilungu lomndeni/umnakekeli wazo angabheka ukuthi kukhona yini ukusebenzisana phakathi kwemithi yazo ye-CML neminye imithi. Uhlelo lokusebenza lusebenzisa isistimu yezibani zethrafikhi ukutshela umsebenzisi ukuthi kungenzeka kube khona ukusebenzisana phakathi kwanoma yimiphi imithi emibili nokuthi noma yikuphi ukusebenzisana kungase kubaluleke kangakanani.
- Ithuluzi lokukhumbuza imithi. Iziguli noma ilungu lomndeni/umnakekeli wazo angasetha isikhumbuzi sansuku zonke ukuzisiza zikhumbule ukuphuza imithi ye-CML (kanye nanoma yimiphi eminye imithi ezingase ziyiphuze njalo). Iziguli zingaphinda zirekhode ngaso sonke isikhathi uma zithatha umthamo wemithi yazo ukuze zihlole ukuthi ukubambelela kwazo njalo njalo zisebenzisa umsebenzi Wokuqhubeka Kwami, futhi zikhiqize igrafu ukuze zabelane nomhlinzeki wazo wezempilo.
- Ikhono lokufaka imiphumela yokuhlolwa kwelebhu ebalulekile. Iziguli noma ilungu lomndeni/umnakekeli wazo angarekhoda imiphumela yokuhlolwa kwegazi ebalulekile njenge-BCR-ABL PCR, inani legazi eligcwele, ukusebenza kwezinso nokusebenza kwesibindi. Iziguli zingakwazi ukulandelela imiphumela yazo ngokuhamba kwesikhathi zisebenzisa amathebula namagrafu esigabeni esithi Ukuqhubeka Kwami.
- Idayari ye-aphoyintimenti. Iziguli noma ilungu lomndeni/umnakekeli wazo angakwazi ukulandelela wonke ama-aphoyintimenti ahlobene ne-CML. Futhi inomsebenzi wamanothi ukuze iziguli zikwazi ukurekhoda noma yimiphi imibuzo noma izihloko ezingase zifune ukukhuluma ngazo nomhlinzeki wazo wezempilo.
- Ukufinyelela kulwazi lwakamuva lwe-CML okuhlanganisa imihlahlandlela, ulwazi lwemithi kanye namaqembu ahlukene okusekela kokubili kwe-CML kanye nomdlavuza uwonke.
I-CML yami iklanyelwe ukusiza iziguli zithole ukubambelela okuthuthukisiwe ekwelashweni, okubaluleke kakhulu ku-CML lapho kunobufakazi obuqinile bokuthi ukungathathi hlangothi kahle kungaholela emiphumeleni yomtholampilo emibi kakhulu kunalapho kufinyelelwa amazinga aphezulu okubambelela.
Idizayinelwe ithimba Losokhemisi be-NHS abasebenza eduze namaqembu abalulekile asekela isiguli e-CML, i-My CML iqukethe isethi yemisebenzi eklanywe ngokukhethekile ukukhuthaza imiphumela yesiguli elungile. Lokhu kubandakanya:
- I-tracker yezimpawu / side effect. Iziguli zingarekhoda ukuthi zizizwa kanjani ngosuku oluthile, kungaba ngendlela yokubhala idayari noma ngokurekhoda amaphuzu (esikalini sika-0-10) ngezimpawu ezithile isib. isicanucanu, isifo sohudo, amajaqamba emisipha njll.
- Isihloli sokusebenzelana kwezidakamizwa. Iziguli noma ilungu lomndeni/umnakekeli wazo angabheka ukuthi kukhona yini ukusebenzisana phakathi kwemithi yazo ye-CML neminye imithi. Uhlelo lokusebenza lusebenzisa isistimu yezibani zethrafikhi ukutshela umsebenzisi ukuthi kungenzeka kube khona ukusebenzisana phakathi kwanoma yimiphi imithi emibili nokuthi noma yikuphi ukusebenzisana kungase kubaluleke kangakanani.
- Ithuluzi lokukhumbuza imithi. Iziguli noma ilungu lomndeni/umnakekeli wazo angasetha isikhumbuzi sansuku zonke ukuzisiza zikhumbule ukuphuza imithi ye-CML (kanye nanoma yimiphi eminye imithi ezingase ziyiphuze njalo). Iziguli zingaphinda zirekhode ngaso sonke isikhathi uma zithatha umthamo wemithi yazo ukuze zihlole ukuthi ukubambelela kwazo njalo njalo zisebenzisa umsebenzi Wokuqhubeka Kwami, futhi zikhiqize igrafu ukuze zabelane nomhlinzeki wazo wezempilo.
- Ikhono lokufaka imiphumela yokuhlolwa kwelebhu ebalulekile. Iziguli noma ilungu lomndeni/umnakekeli wazo angarekhoda imiphumela yokuhlolwa kwegazi ebalulekile njenge-BCR-ABL PCR, inani legazi eligcwele, ukusebenza kwezinso nokusebenza kwesibindi. Iziguli zingakwazi ukulandelela imiphumela yazo ngokuhamba kwesikhathi zisebenzisa amathebula namagrafu esigabeni esithi Ukuqhubeka Kwami.
- Idayari ye-aphoyintimenti. Iziguli noma ilungu lomndeni/umnakekeli wazo angakwazi ukulandelela wonke ama-aphoyintimenti ahlobene ne-CML. Futhi inomsebenzi wamanothi ukuze iziguli zikwazi ukurekhoda noma yimiphi imibuzo noma izihloko ezingase zifune ukukhuluma ngazo nomhlinzeki wazo wezempilo.
- Ukufinyelela kulwazi lwakamuva lwe-CML okuhlanganisa imihlahlandlela, ulwazi lwemithi kanye namaqembu ahlukene okusekela kokubili kwe-CML kanye nomdlavuza uwonke.
I-CML yami iklanyelwe ukusiza iziguli zithole ukubambelela okuthuthukisiwe ekwelashweni, okubaluleke kakhulu ku-CML lapho kunobufakazi obuqinile bokuthi ukungathathi hlangothi kahle kungaholela emiphumeleni yomtholampilo emibi kakhulu kunalapho kufinyelelwa amazinga aphezulu okubambelela.
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