The mobile application "La Suite Necker" is intended for adolescents and young adults with a rare or chronic disease, to enable them to better live with their disease on a daily basis and to gain autonomy. For this, the application allows young patients to organize the follow-up of their care path in a personalized way.
This application, conceived by the "La Suite" coordination team, in collaboration with adolescents monitored at the Necker-Children's Hospital -AP-HP-, was designed so that it could be used by all adolescents and young adults carriers of a rare or chronic disease.
The application allows to:
- Create a profile and enter all of your health information from the "my health passport" tab,
- Schedule personalized alerts for taking medication, renewing prescriptions and medical appointments,
- Prepare your consultations by noting questions to ask health professionals,
- Photograph their health professionals and register their details (subject to their agreement),
- Photographing his medications and note their dosage,
- Consult video tutorials on the transition,
- Be redirected to websites for teenagers and young adults specialized in:
- The adolescence
- Sexuality
- Addictions and drugs
- Schooling and vocational guidance
- Mental health.
This application aims to:
- Make the young actor healthy and autonomous
- Explain the continuity of the care pathway between the pediatric sector and the adult sector.