NF Care

Children's Tumor Foundation

Mayelana nalolu hlelo lokusebenza

Uhlelo lokusebenza lwesiguli se-Children’s Tumor Foundation NF Care lusekela iziguli nabanakekeli abaphila ne-NF, okuhlanganisa zonke izinhlobo ze-neurofibromatosis ne-schwannomatosis. I-NF Care App ihlanganisa imihlahlandlela efaneleke kakhulu, izindaba, nezinsiza ze-NF.

Landelela imithi kanye nolwazi lomhlinzeki wezempilo endaweni eyodwa ephathekayo, lapho ungase futhi umeme amalungu omndeni ukuze ahlanganyele nawe ku-NF Care yakho. I-Children's Tumor Foundation ikwazisa ubumfihlo besiguli, futhi imininingwane yomuntu siqu nedatha yokunakekelwa kwezempilo isetshenziselwa umuzwa wohlelo lokusebenza kuphela futhi ayilokothi yabiwe nabanye abantu.

Mayelana ne-Children's Tumor Foundation:
Yasungulwa ngo-1978, i-Children’s Tumor Foundation (CTF) yaqala njengenhlangano yokuqala emazingeni aphansi ezinikele kuphela ekutholeni ukwelashwa kwe-NF. Namuhla, i-CTF iyisisekelo esihlonishwa kakhulu emhlabeni jikelele esingenzi nzuzo, esingamandla ahamba phambili ekulweni nokuqeda i-NF, kanye nemodeli yeminye imizamo yocwaningo olusha.

Umgomo wethu: Shayela ucwaningo, ukwandisa ulwazi, nokunakekela kusengaphambili umphakathi we-NF.
Umbono wethu: Qeda i-NF.

Uchwepheshe wezokwelapha oqeqeshiwe kuphela onganikeza iseluleko sokunakekelwa kwezempilo noma uhlelo lokwelapha lweziguli eziphila nanoma yiluphi uhlobo lwe-NF. Lolu hlelo lokusebenza lweselula iyithuluzi hhayi ukumiselela ukuhlolwa kokuxilonga nokuphathwa kwezokwelapha okuvela kumhlinzeki wezokunakekelwa kwempilo.

Yini entsha

This update features all-new patient resources in keeping with the recent revision of the NF1 and SWN diagnostic criteria.