The Ataxian

2015 • 73 хвилини

Про цей фільм

The Ataxian examines the life of Kyle Bryant, a man diagnosed with the fatal progressive neuro-muscular disorder, Friedreich’s ataxia. Despite being unable to walk, Kyle, along with a team of friends, attempt the most grueling bicycle race in the world—The Race Across America. Kyle’s determination and unbreakable spirit carry them through sweeping landscapes and a life-changing cross-country trip.

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I loved this film! It shows what it took to ride the hardest bike ride in the world- let alone with a life-threatening/life-shortening neuromuscular disease, Friedrich's Ataxia (FA)! and how to do it with humor and heart! The imagery is great and the story (and stories within the film of families dealing with FA) are both heart-wrenching and inspirational. I love it that Kyle and Sean have gone on to make a great podcast called 2DisabledDudes -- they teach us in this film (and each day) how to live while we have life. I can't wait to share this film with everyone I know! THERE IS ALWAYS HOPE. Keep riding strong, everyone! We can fund a CURE!

My wife also has Friedreich's Ataxia. She was given the opportunity to attend a private screening of this film for people afflicted with this disease and I was very lucky to be able to attend with her. We met Kyle and some other folks involved with the film and with the Freidreich's Ataxia Research Alliance (FARA) and they were wonderful. This story is truly inspirational without the film. Being able to see it on screen was truly captivating. This is a story that deserves to be heard.

I am so grateful that this journey was captured so accurately on film. It is sometimes hard to explain Friedreich's ataxia (FA) and how it affects people's lives. This film tells an accurate story with humor and heart. I'm also grateful for the amazing Team FARA crew and everyone who made this journey and film possible. Here's to crossing the ultimate finish line - a cure for FA!