Guía ECF

Go-Space Solutions

Mayelana nalolu hlelo lokusebenza

Ngo-2009, i-Spanish Group of Erythropathology (GEE), ngaphansi kokubambisana kukaDkt. Pilar Ricart, yashicilela imihlahlandlela yokuphatha nokwelashwa kweziguli ezine-sickle cell disease (SCD).

Phakathi nale minyaka intuthuko olwazini lwalesi sifo iye yaphawuleka. Lokhu, kanye neqiniso lokuthi, ngokufika kwabantu kwamanye amazwe, inani leziguli likhule kakhulu, kusishukumisele ukuba sibuyekeze futhi sibuyekeze umhlahlandlela wangaphambilini.

I-Hemoglobinopathy S iwuhlobo oluvame kakhulu lwe-hemoglobin emhlabeni. Babalelwa ezigidini ezingu-20 abantu abanalesi sifo futhi cishe izingane ezingu-300,000 zizalwa zine-SCD unyaka ngamunye. Futhi nakuba eSpain lesi sifo sasiyivelakancane ngaphambili, ngenxa yokufuduka kwabantu abavela e-Sub-Saharan Africa noma eMelika Ephakathi, okwamanje sineziguli ezingaphezu kwe-1,200 ezine-SCD ezibhalisiwe.

Njengoba kunikezwe ukuthi kuyisifo esinezitho eziningi futhi esiyinkimbinkimbi, umhlahlandlela uqondiswa ngokubamba iqhaza kochwepheshe abaningana njenge-hematologists, odokotela bezingane, odokotela abafundela umsebenzi, odokotela abahlinzayo, abahlinzeki be-traumatologists, ophthalmologists kanye ne-anesthesiologists.

Inezahluko ezingama-23 okuzanywe kuzo ukuvuselela ulwazi nokuvuselela hhayi kuphela isayensi yezinto eziphilayo zalesi sifo kodwa nokuvikela kwaso, ukuhlonzwa kwaso nokwelashwa kwaso, kanye nendlela yokubhekana nezinkinga zaso ezahlukene.

Sizamile ukukucacisa, kufingqiwe futhi kube yi-didactic. Njengoba kunezahluko ezikhuluma ngezitho ezihlukene, eziningi zazo sezivele zibonisiwe eziqondisweni ezedlule, kodwa ezinye ezintsha ezidala okulindelwe okuningi okwamanje, njengemithi emisha ekwelapheni lesi sifo, ukwelapha ngezakhi zofuzo, noma isigaba esithi. ukuxilongwa nokwelashwa kobuhlungu obungapheli, okuye kwashintsha i-paradigm yokuphatha ubuhlungu.

Ngethemba ukuthi lezi ziqondiso, esizilungiselele ngomdlandla onjalo, zingathandeka futhi zisebenziseka kakhulu kochwepheshe bezokwelapha abelapha lezi ziguli, kanye nethuluzi eliyisisekelo eliyinkomba lodokotela begazi, odokotela bezingane, odokotela bezimo eziphuthumayo nodokotela bomndeni.

Ukuqashelwa kwethu okuqotho, okwami ​​kanye nokwabanye abaxhumanisi (uMontserrat López Rubio, uMaría Pilar Ricard noMarta Morado), kubo bonke ababhali, ngomsebenzi wabo, ukuzinikela, intshiseko nolwazi, okube nesandla esikhulu ekwenzeni ngcono uhlelo. .edlule. Siphinde futhi sithokozele umsebenzi omuhle kakhulu owenziwe yi-Medea Publishing kanye ne-Novartis Oncology ngokuxhasa ukunyatheliswa kwale mihlahlandlela.

Siyaqiniseka ukuthi lolu shicilelo olusha lweziqondiso luyoba insika eyisisekelo ekwelapheni lezi ziguli, njengoba luyoba usizo olukhulu kodokotela abanomthwalo wemfanelo kanye nomgomo omkhulu wokuthuthukisa izinga lempilo nokuphathwa kwabantu abanesikela cell. isifo.

Yini entsha

- Actualizada la aplicación según los últimos estándares de Android.
- Optimizado el inicio de la app.