ケアダイアリー｜Fabry

株式会社メディエイド

Mayelana nalolu hlelo lokusebenza

Siyabaseka abantu abanje
Iziguli ze-Fabry ezifuna ukurekhoda izimpawu zazo nezindlela zokuphila zazo nemindeni yazo
Ngifuna ukuveza ngokucacile isimo sami kodokotela nabahlengikazi.
Ngifuna ukuyisebenzisa njengedayari, hhayi nje ngesifo sikaFabry, kodwa futhi mayelana nokudla nokuzivocavoca.

I-Care Diary uhlelo lokusebenza olunikeza ukwesekwa okuphelele ekuphileni kwansuku zonke kweziguli ze-Fabry kanye nemindeni yazo. Ngokurekhoda izimpawu zakho zansuku zonke kanye nempilo yansuku zonke, ungakwazi ukusekela ukuxhumana okungcono nodokotela wakho lapho uvakashela isikhungo sezokwelapha.

Ongakwenza nge-Care Diary
1.Rekhoda kalula izimpawu ezihlukahlukene zesifo sikaFabry
Ungakhetha kalula futhi urekhode izimpawu okhathazeke ngazo ikakhulukazi ezimpawu zeziguli ze-Fabry disease. Ungakwazi futhi ukwengeza imininingwane yezimpawu zakho nesimo sakho sengqondo ngaleso sikhathi endaweni yombhalo wamahhala. Ngokufingqa amarekhodi kuthebula noma igrafu efundeka kalula, ungaqonda izitayela zezimpawu.

2. Idatha erekhodiwe ingabiwa
Imibiko yokubuyekeza ingase futhi ikhishwe njengamafayela e-PDF, ukuze kwabelwane ngayo nodokotela nabahlengikazi ngesikhathi sokubonisana. Iba yithuluzi lokusekela elikuvumela ukuthi uxhumane ngokunembile nezimpawu zakho kulabo abaseduze kwakho.

3. Ungakwazi futhi ukuqapha impilo yomndeni wakho
Awukwazi ukurekhoda futhi ulawule hhayi wena kuphela kodwa nezimpawu zomndeni wakho, imithi, nokuvakasha esibhedlela nge-akhawunti eyodwa.

4.Ukuphathwa kwemithi
Ungarekhoda imithi enqunywe udokotela wakho kanye nemithi etholakala ngaphandle kwe-counter. Kuyenzeka futhi ukuthi ufunde futhi urekhode ikhodi enezinhlangothi ezimbili ephrintiwe esitatimendeni sikadokotela esitholwe ekhemisi, noma ukurekhoda usebenzisa isizindalwazi sezidakamizwa. Ungakwazi futhi ukukuvimbela ekukhohlweni ukuphuza imithi yakho ngokubhalisa i-alamu okhohlwe ukuyiphuza.

5. Ukuphatha ukudla
Ungalayisha izithombe zokudla kwakho kwansuku zonke futhi usebenzise isizindalwazi sokudla ukuze urekhode idatha yokudla okunempilo efana nama-calories, ama-carbohydrate, amaprotheni, namafutha.

6. Isheduli yokuvakasha esibhedlela kanye namarekhodi
Ungashejula futhi urekhode ukuvakasha kwesibhedlela, futhi ungasetha nesaziso se-alamu yokuvakasha esibhedlela ngaphambi kokuvakasha kwesibhedlela okuhleliwe. Ngaphezu kwalokho, idethi ehleliwe yokuvakashela esibhedlela ingaxhunyaniswa nekhalenda ye-OS, ukuze ukwazi ukuhlola idethi ehleliwe yokuvakashela esibhedlela ku-OS noma kwezinye izinhlelo zokusebenza zekhalenda.

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