With the RareLink app (formerly MyaLink), people with rare diseases can easily and efficiently monitor their health together with their treating physician.
NOTE
A one-time code is required for app installation. You will receive this code from a physician who uses the RareLink platform for remote health monitoring of their patients.
Members of the German Myasthenia Gravis Association (DMG) can download the app for self-monitoring free of charge for iOS and Android. Activation requires a code, which members receive from the DMG.
The RareLink app does not replace a necessary doctor's visit and must be used carefully under medical supervision.
INFORMATION
RareLink is a Class I medical device according to the MDD and bears the CE mark. RareLink is ad-free. No in-app purchases or other paid app extensions are offered.
RareLink was developed by the software provider Qurasoft in collaboration with a team of neurologists from Charité University Hospital Berlin.
DATA PROTECTION
When you use RareLink for self-monitoring, the collected data remains only on your smartphone. Only when you share your health diary with a doctor or export the data as a PDF file is the information encrypted and processed on a medical server in Germany. Only you and, if necessary, your doctor have access to this data. Further information can be found in our privacy policy.
Easily and efficiently monitor your health with your treating physician.