Adrenals

Zorgkluis

About this app

The AdrenalAPP helps the patient ensure that crucial medical information is available at any time of the day or night, wherever the patient and his or her smartphone are together.

When a person is diagnosed with adrenal insufficiency, his or her life undergoes a dramatic change. Each morning, they will need to assess the coming day, decide what - if any - measures need to be taken in terms of medication and determine whether they might need to get in touch with their healthcare practitioner(s) about prescriptions and appointments. An app helps them to manage their illness better. This is what we call 'co-management in adrenal care', because an adrenal patient can never manage his illness on his own.

The app on a smartphone makes it possible to explain instantly that the patient has adrenal insufficiency and that he is dependent on hydrocortisone. This means: "inject first, talk later", and that is an essential instruction for the ambulance crew and for the staff in the emergency department.

To keep a firm grip on their health and the necessary care, it is important that patients themselves have their medical information available. Creating the possibility to collect this information with the aid of the AdrenalAPP is therefore an ongoing process. The aim is via the APP to connect to the hospital system and to download the latest medical details from the EPJ held by the endocrinologist or other treating physician.

An adrenal crisis (or Addison crisis) is not on anyone's wish list, so the endocrinologists make instructions available about how to avoid one. With the AdrenalAPP you will always have these instructions at hand.

The AdrenalAPP is also aimed at the family members of a patient with adrenal insufficiency. For parents, for example, who want to tell a teacher about their child's adrenal disorder. The AdrenalAPP even gives details of how to administer an emergency injection. Anyone can add the AdrenalAPP to their smartphone.

Through the app it is possible to trace the phone numbers of those close to you, such as your partner, your parents and your siblings. A link is created to the phone's address book where details of your emergency contacts (ICE) are stored. ICE is the abbreviation of “In Case of Emergency”. But for this to work, those contacts need to be registered as 'ICE contacts' or ‘emergency contacts’ in the address book.

Holiday, conference or exhibition, weekend break. Having adrenal insufficiency is no reason to stay at home, and so patients sometimes find themselves far away from any hospital. Different language or different terms need not be a problem: the AdrenalAPP offers the essential medical information for/about the patient in several languages.