OpenSeizureDetector

OpenSeizureDetector

About this app

See https://openseizuredetector.org.uk for details.

Open Seizure Detector is an epileptic (tonic-clonic) seizure detector / alert system that utilises a low cost (~£35) PineTime smart-watch to detect seizure-like movements, and raises an alarm for a carer. It can also be configured to use a Garmin smart watch to raise alarms based on measured heart rate in addition to movement.

If the system detects seizure-like movement, it can raise alarms in one of three ways:
- Local alarm - the phone emits an alarm sound.
- If it is being used in the home, other devices can connect to it via WiFi to receive alarm notifications.
- If it is being used away from home it can be configured to send SMS text message notifications that include the location of the user.

Please see the Installation Instructions at https://openseizuredetector.org.uk for help with setting up this app.

The system includes self-checking to make sure it is functioning correctly, and will beep to warn the user of faults to help provide reassurance that it is working.

Note that the app will give false alarms for some activities that involve repeated movements (brushing teeth, using hand tools etc.) so it is important that new users spend some time to get used to what will set it off and use the mute function if necessary to reduce false alarms.

You need a PineTime or Garmin Smart Watch that is connected to your Android device for OpenSeizureDetector to work., but you can use the motion sensor in the phone as a 'demo mode' to see what the app will do.

The system does not use any external web services to detect seizures or raise alarms, so is not dependent on an internet connection to work, and no subscriptions to commercial services are needed.

We do however provide a 'Data Sharing' service to allow users contribute to the development of OpenSeizureDetector by sharing the data collected by their device to help improve the detection algorithms.

I recommend subscribing to email updates to the OpenSeizureDetector web site (https://openseizuredetector.org.uk) or Facebook page (https://www.facebook.com/openseizuredetector) if you use the app so I can contact users if I find an issue you should know about.

Note that this app has not been subjected to clinical trials to confirm its detection reliability, but I have had some positive feedback from users saying that it has detected tonic-clonic seizures reliably. An analysis of its performance is published here for reference: https://openseizuredetector.github.io/pages-user/PineTime_Performance_Report.pdf

For more details of how this works see the OpenSeizureDetector web site (https://www.openseizuredetector.org.uk/?page_id=455)

Note that this is free software with source code released under the Open Source Gnu Public Licence (https://github.com/OpenSeizureDetector/Android_Pebble_SD) , so is covered by the following disclaimer which is part of the licence:
I provide the program "as is" without warranty of any kind, either expressed or implied, including, but not limited to, the implied warranties of merchantability and fitness for purpose. the entire risk as to the quality and performance of the programme is with you.

Ratings and reviews

does not work on the Garmin Venu 3 as everything online said it would work best with this model. It won't download on the Venu 3 at all. Samsung with EpiPal worked better than this for less investment. App barely works on phone too and just sends endless emergency texts to my emergency contacts but won't send false alarms. again, does not connect to venu 3 at all

Amazing app, thank you developer. Sends a text message alert when it senses a seizure occuring (via a Garmin watch). Note that in Android 11 I can't get the location text to send (even with location permission switched on), but as a workaround, in Google Maps I have my location permanently shared with my wife.

This is extremely helpful. I set my HR to 75 to trigger the alarm, and works perfectly. I only use it at night as my seizures are nocturnal. My HR only passes 75 when I have seizures so alerts my wife. The sooner I can get anti cluster seizure meds on board, the better obviously (Benzo, Clobazam etc). Thank you so much for creating this App for people who suffer from this condition, and wish you all the best for your son. Best wishes to you. Matt

What’s new

V5.0.9: Fixed issue with SMS permissions not being requested properly, and app not re-starting automatically if bluetooth device changed.