Living Life to the Fullest: Disability, Youth and Voice

Kirsty Liddiard · Sally Whitney-Mitchell · Katy Evans · Lucy Watts · Ruth Spurr · Emma Vogelmann · Katherine Runswick-Cole · Dan Goodley

Mey 2022 · Emerald Group Publishing

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This co-authored text critically explores the key findings of the Living Life to the Fullest project – a project that has explored the lives, thoughts, hopes and aspirations of disabled young people living with life-limiting and life-threatening conditions. Written by disabled young people and academic researchers, the book articulates ethical co-production in social research.

The prolific contemporary political and theoretical debates about life, death and the human in an age of global precarity and austerity are explored in this book. Chapters draw upon key themes and co-researchers’ priorities for writing about their lives: for example, the politics and potentials of co-production as a research method/ology; animal and human relationships; aging, time; sexuality and body image; politics, activism and disability arts and culture; and fragility, and death and dying.

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Kirsty Liddiard is a Senior Research Fellow in the School of Education and co-director of iHuman at the University of Sheffield.

Sally Whitney-Mitchell is an academic researcher with a specialist interest in the lives of disabled young people.

Katy Evans, a Disability Studies graduate, shares her experiences as a young disabled person.

Lucy Watts MBE is an accomplished patient leader and communicator who is passionate about making a difference.

Ruth Spurr lives with multiple complex conditions which cause life threatening complications. She raises awareness through public communications.

Emma Vogelmann is a law graduate and works at Muscular Dystrophy UK.

Katherine Runswick-Cole is Professor of Education and Director of Research in The School of Education at the University of Sheffield.

Dan Goodley is a Professor of Disability Studies and Education in the School of Education and co-director of iHuman at the University of Sheffield.