This one-stop resource provides proven coping skills, first-hand advice, and practical tools, such as worksheets to assess care options, questions to ask doctors, and current listings of care providers.
Gary N. Guten, MD, MA, is an orthopedic surgeon, author, and Parkinson's patient.
Jo Horne, MA, is the author of three books and a long-distance care partner.
A complete guide to Parkinson's from two people with the disease who cofounded a national support and advocacy organization.
In Living Well with Parkinson's Disease, Gretchen Garie and Michael J. Church, a couple who both have Parkinson's and live daily with the effects of the disease, thoroughly discuss diagnosis, treatment options, and the emotional consequences of this difficult illness. With a conversational, pragmatic, and personal tone, they offer advice on such topics as:how Parkinson's disease affects relationshipsthe role of diet, supplements, and rest and relaxationstrategies for navigating professional life and the maze of the health-care systemhandling everyday challenges such as buttoning a shirt or rolling over in bedand more!
Compassionate and inspiring, Living Well with Parkinson's Disease offers knowledge and wisdom from those who understand the challenges of dealing with Parkinson's every day.
Ask the Doctor About Parkinson's Disease is the perfect reference for individuals living PD, or for loved ones too embarrassed to ask questions.
In the United States, an estimated 42 million people suffer from some form of movement disorder. Common movement disorders include Parkinson's disease (PD), essential tremor (ET), and dystonia. Although medications may be helpful for these conditions, in many patients, symptoms cannot be controlled with medications alone. In such situations, their physicians may recommend a surgical procedure known as Deep Brain Stimulation (DBS). DBS is a revolutionary technology using an implanted device to deliver electrical stimulation to the brain to help symptoms, alleviate suffering, and improve quality of life. The Food and Drug Administration (FDA) approved DBS as a treatment for essential tremor in 1997, for Parkinson's disease in 2002, and dystonia in 2003.
Deep brain stimulation has dramatically changed the lives of many patients with uncontrollable tremors. Patients often can resume normal activities, such as feeding and dressing themselves, and can have active and fulfilling lives. The need for anti-tremor medications is often reduced or eliminated.
Though it's no longer considered experimental, DBS is, for now, still used as a second- or third-line treatment, reserved for patients with more advanced cases of the disease and those for whom medication alone is inadequate or can't be adjusted precisely enough to keep their tremors and writhing under control.
However the idea of this surgery being a "last resort" is an evolving concept. Ten years ago doctors were operating on only the most severe, disabled, wheelchair-dependent patients, now they are operating on patients with moderate-to-severe cases of PD, ET and Dystonia. The thought is that this trend will continue. Instead of saying "wait another five to ten years until you become more disabled" doctors are realizing that the earlier they use DBS, the more they can improve the quality of life of their patients.
The fact is, lots of people live their lives with MS "without" making a full-time job of it.
"MS for Dummies" gives you easy to access, easy to understand information about what happens with MS--what kinds of symptoms it can cause, how it can affect your life at home and at work, what you can do to feel and function up to snuff, and how you can protect yourself and your family against the long-term unpredictability of the disease. You'll learn: Why some people get MS and others don'tHow to make treatment and lifestyle choices that work for youWhat qualities to look for in a neurologist and in the rest of your healthcare teamHow to manage fatigue, walking problems, and visual changesWhy the road to diagnosis can be full of twists and turnsHow to understand the pros and cons of alternative medicineWhy and how to talk to your kids about MSHow to find stress management strategies that work for youYour rights under the Americans with Disabilities Act
Complete with listings of valuable resources such as other books, Web sites, and community agencies and organizations that you can tap for information or assistance," MS for Dummies" will tell you everything you need to know in order to make educated choices and comfortable decisions about life with MS.
First described as ``shaking palsy'' the disease that now bears his name, medical science has thus far been unable to unravel the cause or causes of most Parkinson's cases or to devise a cure. Nonetheless, dramatic progress has been made in treating the disease, which is known to afflict about half a million older Americans.
Some of the need to know facts within this book:
Parkinson’s Disease - The Shaking Palsy, Why Is Parkinson's Disease Difficult To Diagnose?, Who Gets Parkinson's Disease?, What Are The Factors That Effect Diagnoses?, Gender, Ethnicity, Heredity, Cigarette Smokers, Coffee Drinkers, Parkinson's Disease Are Some People Predisposed To It?, Symptoms Of Parkinson’s Disease, 5 Stages Of Parkinson's Disease, Stage 1, Stage 2, Stage 3, Stage 4, Stage 5, Recognizing Changing Symptoms In Parkinson's Disease May Help Patients To Better Manage, Their Condition, Coping With Depression After A Parkinson's Diagnosis, Is There A Correlation Between Parkinson’s Disease And Sleep Disorders?
Living Well with Dystonia: A Patient Guide provides comprehensive information on a wide array of dystonias. It is intended individuals with various forms of dystonia who want to adjust lifestyle activities to accommodate this chronic condition, but do not want the disorder to define them. It is a resource and tool for both individuals with the disorder and their families to become better educated about the options available to them.
Living Well with Dystonia covers:
What is Dystonia?
Personal Vignettes Resources