florio PNH

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About this app

florio PNH is your digital companion designed to support people with paroxysmal nocturnal haemoglobinuria (PNH) in their daily routines.

The App allows you to set up a personalised PNH diary, log medications, blood values, and outcomes of PNH, such as fatigue, pain, dark urine, etc. Reminders can help you in managing your PNH routine.

Historical data and observed changes over time are summarised in a clear and visual format designed to help you to better understand your condition and help facilitate meaningful discussions with your healthcare team to inform your care.

In addition, aiming to improve PNH care, your non-identifiable data may contribute to medical research.

Please note that the application does not provide specific treatment recommendations to alter a previously prescribed treatment or therapy.
Updated on
Jul 11, 2023

Data safety

Safety starts with understanding how developers collect and share your data. Data privacy and security practices may vary based on your use, region, and age. The developer provided this information and may update it over time.
No data shared with third parties
Learn more about how developers declare sharing
This app may collect these data types
Personal info, Health and fitness and 4 others
Data is encrypted in transit
You can request that data be deleted

What's new

- Launch in Hungary, Italy, Norway, Poland, Spain and Sweden
- Added LDH level and fever logging
- Patient report now also includes LDH level and fever logs
- Bug fixes and minor enhancements