RareGuru: Rare Disease Patient & Caregiver Support

3.2
6 reviews
500+
Downloads
Content rating
Teen
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About this app

If you’re suffering from a rare disease or chronic illness or caring for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, find health data, and share your story on RareGuru.

RareGuru is a free mobile app that matches caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the resources and the social health group you need to thrive.

Connect with knowledgeable and motivated patients and caregivers like you. Track your symptoms, share your diagnosis, learn more about your disease, and help others through their healing process.

Get support from people who share your disease. Find and show support for chronic diseases, depression, symptoms, and more with a network of patients and caregivers.

Share as much or as little about yourself and your condition as you’d like. Whether you have a chronic disease, newly identified disease or mental disease, what you share with whom is your decision.

Don’t let your disease isolate you from the world. Connect and learn together with RareGuru.

RareGuru Features:

Connect and share with safe and secure social networking.
Create a private or public profile sharing only the information you’re comfortable with. RareGuru matches you with other users who share a similar diagnosis or symptoms, and you can filter your matches based on location, age, gender, and user type. Connect only with the users you select and message them through private or group chats.

Multiple User Types. Many rare diseases are genetic, and several family members may have the same disease. Users can select to be a patient, caregiver, or both.

Rare Disease Database
RareGuru’s disease database contains 7,000 rare diseases and chronic illnesses and more than 21,000 symptoms. The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD). Users who have a rare diagnosis that is not in the disease database earn a unicorn icon to indicate the rarity.

Symptom Tracker
Track symptoms and take notes to evaluate your condition. You can export data trends for sharing with doctors and specialists.

Rare Disease and Chronic Illness Database
RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms. The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD). Diagnoses not yet in the disease database earn a unicorn icon to indicate the rarity.

Global Disease map
Search the global disease map to see where certain diseases are more or less rare. Find out how many RareGuru users share your diagnosis in any location.

RareGuru helps connect and support those experiencing rare diseases. Download today and join us.
Updated on
Apr 21, 2021

Data safety

Developers can show information here about how their app collects and uses your data. Learn more about data safety
No information available
3.2
6 reviews
Thunder & Bolt
August 3, 2020
I downloaded this app after seeing someone else with my rare disease post about it on Instagram. I have already connected with several people who have my same diagnosis!! I also like how you match on diagnosis and symptoms so if you're searching for a diagnosis, you might be able to find clues as to what's going on through symptoms you match on with other people who have been diagnosed. Hoping this will be a game changer for me 🦓
3 people found this review helpful
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RareGuru, LLC
August 3, 2020
We are so happy you found RareGuru and are already making connections! We are still fairly new so please send any feedback on improvements or new features our way. Stay Well!
Khaidrion Depalma
July 25, 2021
Bug in account doesn't believe any location exists. Unable to create account due to bug.
1 person found this review helpful
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RareGuru, LLC
July 25, 2021
Khaidrion, Thank you for alerting us to this bug & our apologies for any inconvenience it has caused. We’re in the process of pushing through a new update on to address this issue. Stay tuned as it should be fixed shortly. We hope you will revisit your review once this issue has been corrected and you see how awesome the app is. Stay well!
Kevin Bennett
May 27, 2020
This app is pure gold for me. To be able to find a group of people who are matched to you, then be able to discuss and share a diagnosed rare disease or chronic illness with others who know your struggles is truly a Godsend. My family and I are so thankful to have found RareGuru!
3 people found this review helpful
Did you find this helpful?
RareGuru, LLC
August 3, 2020
We are so happy that you are enjoying the app. If there is anything we can do for you, just let us know at https://rareguru.com. Stay Well!

What's new

This version fixes location search not showing valid addresses and updates some internal libraries to their latest version.