Navigating Life with Amyotrophic Lateral Sclerosis

Mark B. Bromberg · Diane Banks Bromberg

Apr 2017 · Oxford University Press

About this ebook

Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

About the author

Mark B. Bromberg, MD, PhD, FAAN, received his PhD in neurophysiology from the University of Vermont and his MD from the University of Michigan, where he also received his training in neurology. He is currently a professor of neurology at the University of Utah. He has been involved in ALS research and patient care for more than 30 years. Diane Banks Bromberg, JD, earned her law degree from the University of Utah and practices commercial real estate law. She cared for her mother, who had ALS.