Patient Registry Data for Research: A Basic Practical Guide

Mohamad Adam Bujang · Ang Swee Hung · Tg Mohd Ikhwan Tg Abu Bakar Sidik · Tassha Hilda Adnan · Nadiah Sa'at · Hon Yoon Khee · Alan Fong Yean Yip

avr. 2021 · Institute for Clinical Research, NIH, Malaysia

À propos de cet e-book

Analysis of patient data can be a complicated and challenging process, especially when the data involve many subjects and many variables. A patient registry is a database that organizes collecting the important set of data on a list of identifiable individuals for a specific disease. This type of data usually has tons of data and hundreds of different variables. Thus, the approach to conducting research by using a patient registry database will be more complicated than the other types of dataset. Since the handling of patient registry data is a challenging task, the authors have come out with this e-book/book to become a guideline for the statisticians, medical officers and scientists for them to refer as a handbook whenever they need to use patient registry data for their research.

À propos de l'auteur

Dr. Mohamad Adam Bujang is a Research Officer at the Institute for Clinical Research (ICR), Ministry of Health, Malaysia. Currently he is working as a biostatistician and researcher in the Clinical Research Centre, Sarawak General Hospital. He earned his PhD in Information Technology and Quantitative Sciences from MARA University of Technology in 2017.

Dr. Ang Swee Hung is a medical officer at the Institute for Clinical Research (ICR), Ministry of Health, Malaysia. She started working in the research field since 2013, and was stationed at the Clinical Research Centre in Hospital Melaka before joining the headquarters of ICR in 2016. She competed her Master in Public Health in 2020 and is currently a candidate of Doctor in Public Health in University of Malaya, Malaysia.

Mr. Tg Mohd Ikhwan Tg Abu Bakar Sidik is currently a PhD candidate in Universiti Kebangsaan Malaysia (UKM). Previously he was a biostatistician in the Institute for Clinical Research (ICR). He earned his Master in Statistics from Universiti Putra Malaysia in 2014.

Tassha Hilda Adnan is currently a Statistician in the Sector for Biostatistics & Data Repository, National Institutes of Health, Ministry of Health Malaysia. Formerly, she had joined Institute for Clinical Research, Ministry of Health from 2009 to 2019. She graduated with a Bachelor of Science (Hons.) Statistics from Universiti Teknologi MARA, Shah Alam in 2004.

Miss Nadiah binti Sa'at is a former Research Officer at the Institute for Clinical Research (ICR), Ministry of Health, Malaysia. She joined the Institute for Clinical Research, Ministry of Health in 2012 and currently she further her study in Medical Statistics at Universiti Sains Malaysia (USM). She earned her Bachelor in Mathematics form Universiti Putra Malaysia (UPM) 2007-2011.

Mr. Hon Yoon Khee is a pharmacist working in the Institute for Clinical Research (ICR), Ministry of Health, Malaysia since May 2008 until now. He graduated with a Bachelor of Pharmacy degree from Otago University in New Zealand in December 1998, and had since been practising in community pharmacy and hospital pharmacy for several years before joining the Institute for Clinical Research, Ministry of Health in 2008. He also studied part-time clinical pharmacy from September 2007 until August 2012, and was awarded a Graduate Diploma in Clinical Pharmacy by University of South Australia in August 2012.

Dr. Alan Fong Yean Yip is a Consultant Cardiologist in Heart Centre and a Network Head Clinical Research Centre, Sarawak General Hospital. He graduated from Royal College of Physicians, London, United Kingdom in 2004. He has various academic qualifications and the two latest were FRCP from Royal College of Physicians of Edinburgh in 2014 and FSCAI from Society of Cardiovascular Angiography and Interventions in 2017.

Prof. Dr. Jamalludin Ab Rahman, Deputy Dean (Postgraduate & Research), Department of Community Medicine, Kulliyyah (Faculty) of Medicine, International Islamic University Malaysia.

Prof. Dr Shamsul Azhar Shah, Community Health Department, Faculty of Medicine, University Kebangsaan Malaysia

Institute For Clinical Research, National Institutes of Health (NIH), Ministry of Health Malaysia, Block B4, No.1, Jalan Setia Murni U13/52, Seksyen U13, 40170 Shah Alam, Selangor Darul Ehsan, Malaysia. Phone: [phone] | Fax: [phone] | Email: [e-mail]

Dr. Chew Cheng Hoon is a clinical research physician at Institute for Clinical Research, NIH Malaysia. She is an experienced doctor with a demonstrated history of working in the hospital & health care industry. Skilled in Epidemiology, Clinical Medicine, Healthcare Information Technology (HIT), Healthcare, and Healthcare Management.