Travelers to Unimaginable Lands: Stories of Dementia, the Caregiver, and the Human Brain

Dasha Kiper

mar 2023 · Shitur nga Random House

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These “moving and often surprising” (The Wall Street Journal) case histories meld science and storytelling to show that caregivers don’t just witness cognitive decline in their loved ones with dementia—they are its invisible victims.
 
“This book will forever change the way we see people with dementia disorders—and the people who care for them.”—Lori Gottlieb, author of Maybe You Should Talk to Someone
 
A BBC BOOK OF THE WEEK • A TELEGRAPH BEST BOOK OF SUMMER • A NEW YORK TIMES BOOK REVIEW EDITORS’ CHOICE

Inspired by Dasha Kiper’s experience as a caregiver and counselor and informed by a breadth of cognitive and neurological research, Travelers to Unimaginable Lands dispels the myth of the perfect caregiver. In these compassionate, nonjudgmental stories of parents and children, husbands and wives, contending with dementia disorders, Kiper explores the existential dilemmas created by this disease: a man believes his wife is an impostor; a woman’s imaginary friendships with famous authors drive a wedge between her and her devoted husband; another woman’s childhood trauma emerges to torment her son; a man’s sudden, intense Catholic piety provokes his wife.
 
Kiper explains why the caregivers are maddened by these behaviors, mirroring their patients’ irrationality, even though they’ve been told it’s the disease at work. By demystifying the neurological obstacles to caregiving, Kiper illuminates the terrible pressure dementia disorders exert on our closest relationships, offering caregivers the perspective they need to be gentler with themselves.

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Dasha Kiper is the former consulting clinical director of support groups at an Alzheimer’s organization and has an MA in clinical psychology from Columbia University. She has worked with both dementia patients and caregivers.